The Development and Certification of Decision Aids: Promoting Shared Decision-Making for Patients with Serious Illness
Couldn't join us for the event? Check out some of the panelist' slide presentations below!
Decision aids can be highly-effective tools to promote shared decision making and support patients in becoming engaged participants in their healthcare. This was a first-ever convening with leaders behind a Washington experiment in certifying decision aids, as state officials, health systems, and on-the-ground implementation experts shared lessons learned and discussed policy recommendations for national or statewide approaches to decision aid certification.
This event was part of the Project for Advanced Care and Health Policy, a collaboration between the Petrie-Flom Center and the Coalition to Transform Advanced Care (C-TAC), a non-partisan, non-profit alliance of over 130 national organizations dedicated to being a catalyst to change the health delivery system, empower consumers, enhance provider capacity and improve public and private policies in advanced illness care.
Funding for this event was provided by Cambia Health Foundation, Kaiser Permanente, the Milbank Memorial Fund, and the Coalition to Transform Advanced Care (C-TAC).
Program Overview
Person-centered care presents a unique opportunity to achieve the Quadruple Aim, especially during serious illness when people are the most vulnerable. Building on the work of NQF and others, it is now clear that healthcare purchasers (states, plans, care providers) committed to person-centered care should also be committed to shared decision-making.
A number of policy initiatives have sought to increase the use of decision aids as an effective way to further shared decision making and person-centered care. Washington is the first - and, as of the date of this convening, only - state to recognize and act on this opportunity by establishing a process to certify decision aids across the health continuum, including during serious illness when people are the most vulnerable. This program examined the Washington experience and also explored policy barriers for replication of the Washington model at the state and national levels.
This event was free and open to the public.
Program Schedule
8:00 - 8:30am, Registration
8:30 - 8:35am, Welcome Remarks
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Mark Sterling, Senior Fellow in Advanced Care and Health Policy, the Petrie-Flom Center and senior strategic advisor, the Coalition to Transform Advanced Care (C-TAC)
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Carmel Shachar, Executive Director, the Petrie-Flom Center and Lecturer on Law, Harvard Law School
8:35 - 9:35am, Theory and Knowledge Regarding Decision Aids
Speakers presented an overview of the state of the science.
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Glyn Elwyn, MD, PhD, Professor and Senior Scientist, The Dartmouth Institute for Health Policy & Clinical Practice
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Dominick Frosch, PhD, Palo Alto Medical Foundation Research Institute
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Dawn Stacey, MScH, PhD, University of Ottawa
9:35 - 10:35am, The Washington State Experience
Panelists discussed the use of legislation and policy to promote shared decision-making and utilization of decision aids.
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Karen Merrikin, JD, Project Consultant, Washington State Health Care Authority
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Ben Moulton, JD, MPH, Adjunct Lecturer, Harvard T. H. Chan School of Public Health and Boston University School of Law
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Thaddeus Mason Pope, JD, PhD, Director, Health Law Institute and Professor of Law, Mitchell Hamline School of Law
10:35 - 10:45am, Break
10:45 - 11:45am, The Creation of a Decision Aid Certification Process
A representative from the Washington State Health Care Authority Patient Decision Aid Certification committee discussed the development of a statewide decision aid certification program, experiences, challenges, and barriers.
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Laura Pennington, Practice Transformation Manager, Washington State Health Care Authority
Session Materials
11:45am - 12:30pm, Shared Decision-Making Implementation: What Do We Know?
This session addressed lessons learned from the field, including how one health system successfully implemented shared decision-making, changing the culture of their practice; the challenges they encountered along the way; and where they are today.
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Matt Handley, MD, Senior Medical Director for Quality and Safety, Kaiser Permanente of Washington
Session Materials
12:30 - 1:30pm, Lunch and Networking
1:30 - 2:15pm, How Decision Aids Can Promote Person-Centered Care for Serious Illness
Panelists introduced the Respecting Choices approach to the creation and utilization of encounter decision aids to promote shared decision-making.
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Linda Briggs, MSN, MA, RN, Director of Program Development & Research, Respecting Choices, a division of C-TAC Innovations
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Sandy Schellinger, MSN, RN, NP-C, Senior Faculty and Consultant, Respecting Choices, a division of C-TAC Innovations
Session Materials
2:15 - 3:30pm, Next Steps: Moving from Science and Policy to Practice
A Call to Action: Building on the Washington state experience, this panel discussion and interactive session explored how key partners can work together to allow decision aids to accelerate the move of shared decision-making into the mainstream of clinical practice, and recommended policies that can overcome barriers to replication in other states and nationally.
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Christopher F. Koller, President, Milbank Memorial Fund
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Jennifer Lippy, CMS/CMMI, Health Insurance Specialist and Project Officer, Medicare Care Choices Model
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Thaddeus Mason Pope, JD, PhD, Director, Health Law Institute and Professor of Law, Mitchell Hamline School of Law
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Glyn Elwyn, MD, PhD, Professor and Senior Scientist, The Dartmouth Institute for Health Policy & Clinical Practice
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Laura Pennington, Practice Transformation Manager, Washington State Health Care Authority
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Facilitator: Karen Merrikin, JD, Project Consultant, Washington State Health Care Authority
3:30 - 4:30pm, Networking Reception
Learn More!
Slide Presentations
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Linda Briggs and Sandra Schellinger, How Decision Aids Can Promote Person‐Centered Care for Serious Illness
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Glyn Elwyn, Shared Decision Making... a dangerous idea
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Dominick Frosch, Many Miles to Go… Implementing Shared Decision Making in Routine Practice
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Matt Handley, Shared Decision Making Implementation Stories and Lessons Learned
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Karen Merrikin, Shared Decision Making Washington State's Health Policy Journey
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Benjamin Moulton, Shared Decision Making: Why SDM and Certified Decision Aids
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Laura Pennington, Developing a Process to Certify Patient Decision Aids in Washington State
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Thaddeus Mason Pope, Using Legislation and Policy to Promote Shared Decision Making and Utilization of Decision Aids
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Dawn Stacey, Theory and Knowledge of Patient Decision Aids: the Evidence
This event was part of the Project for Advanced Care and Health Policy, a collaboration between the Petrie-Flom Center and the Coalition to Transform Advanced Care (C-TAC), a non-partisan, non-profit alliance of over 130 national organizations dedicated to being a catalyst to change the health delivery system, empower consumers, enhance provider capacity and improve public and private policies in advanced illness care.
Funding for this event was provided by Cambia Health Foundation, Kaiser Permanente, the Milbank Memorial Fund, and the Coalition to Transform Advanced Care (C-TAC).
Videos
Video: Welcome Remarks
Video: Introduction: Theory and Knowledge Regarding Decision Aids
Video: Glyn Elwyn: Theory and Knowledge Regarding Decision Aids
Video: Dawn Stacey: Theory and Knowledge Regarding Decision Aids
Video: Dominick Frosch: Theory and Knowledge Regarding Decision Aids
Video: Audience Q & A: Theory and Knowledge Regarding Decision Aids
Video: Introduction:The Washington State Experience
Video: Ben Moulton: The Washington State Experience
Video: Karen Merrikin: The Washington State Experience
Video: Thaddeus Mason Pope: The Washington State Experience
Video: Audience Q & A: The Washington State Experience
Video: Introduction: The Creation of a Decision Aid Certification Process
Video: Laura Pennington: The Creation of a Decision Aid Certification Process
Video: Audience Q & A: The Creation of a Decision Aid Certification Process
Video: Introduction: Shared Decision-Making Implementation: What Do We Know?
Video: Matt Handley: Shared Decision-Making Implementation: What Do We Know?
Video: Audience Q & A: Shared Decision-Making Implementation: What Do We Know?
Video: Linda Briggs: How Decision Aids Can Promote Person-Centered Care for Serious Illness
Video: Sandy Schellinger: How Decision Aids Can Promote Person-Centered Care for Serious Illness
Video: Audience Q & A: How Decision Aids Can Promote Person-Centered Care for Serious Illness
Video: Moderated Q & A: Next Steps: Moving from Science and Policy to Practice
Video: Audience Q & A: Next Steps: Moving from Science and Policy to Practice
Tags
aging bioethics doctor patient relationship end of life health law policy public health regulation