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March 3, 2016, 4:30 - 6:00 PM

Event Description

Some subjects who participate in trials of novel therapies mistakenly believe that the trial is designed to maximize benefit to the individual subjects -- thus laboring under the Therapeutic Misconception. Patients with ALS have a uniformly fatal disease, and some worry that ALS patients are even more prone to the therapeutic misconception.

Our speakers will discuss the evidence for a therapeutic misconception in ALS trials, and consider more broadly how the therapeutic misconception should be addressed by investigators and institutional review boards.

Speakers

  • Scott Kim, MD, PhD, Department of Bioethics, National Institutes of Health

  • James D. Berry, MD, MPH, Unit Chiefm ALS Multidisciplinary Clinic, Massachusetts General Hospital

  • Spencer Hey, PhD, Research Fellow, Brigham and Women's Hospital Instructor, Center for Bioethics Harvard Medical School

Ways to Join

This event is free and open to the public, but if you are not affiliated with Harvard you must register to attend. Please bring proof of ID to the event due to building security. REGISTER NOW!

Twitter: Follow @HMSbioethics on Twitter and join the conversation using #neuroethx

Can't attend in person? Watch the webcast live on bioethics.hms.harvard.edu.

Neuroethics Seminar Series

This event is part of a series hosted by the Center for Biothics at Harvard Medical School. For more information, visit the website.

Co-sponsors

  • The International Neuroethics Society

  • The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics, Harvard Law School

  • Center for Law, Brain, and Behavior, MGH

  • Institute for the Neurosciences, BWH

  • Center for Brain Science, Harvard University

  • Department of Neurobiology, Harvard Medical School

With funding from

  • Mind Brain Behavior Interfaculty Initiative, Harvard University

  • The Harvard Brain Initiative Collaborative Seed Grant Program

Tags

bioethics   clinical research   health law policy   human subjects research   neuroscience