Advice From Patients On A Study’s Design Makes For Better Science
[...] The study has been recruiting patients at a record pace. In its first three months it enrolled 800 patients, far more than the 150 the researchers expected, Comis says.
The organizers had to pause the study briefly, to reconfigure their labs to keep up with the flood of patients.
That rapid clip is no doubt because the study is aimed at patients who are running out of traditional treatment options.
But it's also because the researchers who designed the study stopped to ask what would appeal to potential participants. Nancy Roach, a longtime patient's advocate who lives in rural Oregon, got involved early on, and helped advise the scientists planning this study. [...]bioethics human subjects research pharmaceuticals public health regulation research