On May 11, the Israeli Supreme Court handed down its long-awaited ruling in the case known as the “Assuta Embryo Mix-Up.” The case has drawn widespread attention in Israel and abroad — not just because of its heartbreaking facts, but because it forces courts to answer a question that reproductive technology has now raised in…
There is an increasing drumbeat of support for an ethical and legal duty for physicians to reinterpret genetic test results.
By Kayte Spector-Bagdady JD, MBioethics Department of Obstetrics & Gynecology; Research Ethics Service, Center for Bioethics & Social Sciences in Medicine, University of Michigan Medical School, Ann Arbor, MI With recent reports of Google’s data deals with Ascension health and the University of Chicago, there has been a lot of attention paid recently to the…
By: Leslie E. Wolf, JD, MPH, Georgia State University College of Law, Interim Dean and Distinguished University Professor and Laura M. Beskow, MPH, PhD, Ann Geddes Stahlman Chair in Medical Ethics, Center for Biomedical Ethics and Society, Vanderbilt University Medical Center In our article, Genomic databases, subpoenas, and Certificates of Confidentiality, published in Genetics in…
By Jeffrey R. Botkin, MD, MPH, Professor of Pediatrics and Medical Ethics at University of Utah We are at a critical crossroad in reproductive medicine. How should science and society more broadly manage the powerful new technologies that can alter the genes of human embryos? In a recent paper published in Genetics in Medicine, the…
Persons with disabilities constitute the largest health disparities group in the U.S., but they have largely been absent from the conversations on precision medicine research.
Minority groups risk not benefiting from genomic discoveries to the same degree as individuals of European descent.
Ethical principles of health equity and justice must be examined as these new therapies are developed and progress to first-in-human clinical trials.
Multiple changes are looming in both the doctor’s and the patient’s roles. Here we highlight two of them.
By Maya Sabatello Stakeholders’ engagement is key to achieving the promises of precision medicine research. It is needed in order to establish a sufficiently powered cohort of diverse groups that will allow tailoring disease diagnosis, treatment, and prevention to individual variability in genes, environment, and lifestyle. It is also needed to ensure that research priorities are…
