public static function News, Resources, and Events Tagged "Bioethics" | Petrie-Flom Center

The Petrie-Flom Center and Edmond J. Safra Center for Ethics Fellow-in-Residence
Petrie-Flom Center, Harvard Law School, and Edmond J. Safra Center, Harvard University

Deadline: November 15, 2018

Each year the Edmond J. Safra Center for Ethics at Harvard University hosts several fellows-in-residence. For 2019-20, they are concentrating their fellowships on the Ethics of Technological… Read More

Call for Abstracts: 2019 Petrie-Flom Center Annual Conference: Consuming Genetics
Petrie-Flom Center, Harvard Law School

Deadline: Closed.

The call for abstracts for the 2019 annual conference is now closed. The conference agenda will be posted in late fall 2018 to the conference website. Consuming Genetics: The Ethical and Legal Considerations… Read More

2018-2019 Petrie-Flom Center Student Fellowship
Harvard Law School

Deadline: August 10, 2018

The Center and Student Fellowship The Petrie-Flom Center Student Fellowship Program is designed to mentor students seeking to become thought leaders in health law policy and bioethics. The fellowship supports… Read More

2017-2018 Petrie-Flom Center Student Fellowship
Harvard Law School

Deadline: August 11, 2017

The deadline for applications for the 2017-2018 fellowship is now closed.  The Center and Student Fellowship. The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics is an interdisciplinary… Read More

N.I.H. to Scrutinize Private Donations to Scientific Research Projects

New York Times, December 13, 2018
by Roni Caryn Rabin

Six months after halting a study of moderate drinking that was underwritten by donations from the alcohol industry, the National Institutes of Health outlined a series of steps to prevent similar… Read More

Organ donors to be asked if they are religious

BBC News (UK), December 13, 2018

People who join the NHS's UK organ donation register are to be asked if they want their religious beliefs to be considered in the donation process. The question aims to reassure people that donation… Read More

Freeze on fetal tissue procurement may impede work at NIH cancer lab, agency says

STAT, December 12, 2018
by Ike Swetlitz

WASHINGTON — The National Institutes of Health freeze on fetal tissue procurement is threatening to hamper work at an agency lab conducting cancer research, the latest sign that a Trump administration… Read More

Health as a Human Right, Medicare for All, and the Evolution of the American Health Care Debate

Take Care Blog, December 11, 2018
by By Carmel Shachar (Executive Director), Alex Pearlman (Communications Manager) and I. Glenn Cohen (Faculty Director)

From the article: "The United States famously does not have an explicit federal constitutional right to health.  By contract, the “enjoyment of the highest attainable standard of health”… Read More

Access to Personal Information for Public Health Research: Transparency Should Always Be Mandatory

Canadian Journal of Bioethics, December 7, 2018
by by Jean-Christophe Bélisle-Pipon (Visiting Researcher)

From the article: "In Québec, the Act Respecting Access to Documents Held by Public Bodies and the Protection of Personal Information provides an exception to transparency to most public… Read More

AVAILABLE FOR PRE-ORDER! Transparency in Health and Health Care in the United States

Cambridge University Press, Forthcoming June 2019
by Holly Fernandez Lynch, I. Glenn Cohen, Carmel Shachar, and Barbara J. Evans (eds.)

This edited volume stems from the Petrie-Flom Center’s 2017 annual conference, which brought together leading experts to reach better understandings of this health policy buzzword, recognizing… Read More

The Ethics of Heritable Genome Editing

JAMA, December 3, 2018
by Eli Y. Adashi and I. Glenn Cohen (Faculty Director)

From the article:  Editing the genome of human gametes or embryos is a disruptive unactualized technology and continues to be the subject of a wide range of concerns. The chief concern is the… Read More

Now Mental Health Patients Can Specify Their Care Before Hallucinations and Voices Overwhelm Them

New York Times, December 3, 2018
by Pam Belluck

[...] He completed a psychiatric advance directive, a legal document declaring what treatment he does and doesn’t want. Increasingly, patients, advocates and doctors believe such directives (called… Read More

Are IVF embryos persons? A mum and dad who lost theirs say they are

BioEdge, December 1, 2018
by By Michael Cook, quoting I. Glenn Cohen (Faculty Director)

From the article: "The 'chain of profound implications for other families' dismays three bioethicists and lawyers writing in Annals of Internal Medicine, Eli Adashi, of Brown University;… Read More

Genetically Modified People Are Walking Among Us

New York Times, December 1, 2018
by By Carl Zimmer, interviewing I. Glenn Cohen (Faculty Director)

From the article: "I got in touch with Glenn Cohen, a professor at Harvard Law School who studies reproductive technologies, to ask him to guess what happens next. His forecast sounded like a repeat of… Read More

On Repugnance, Distribution, and the Global Kidney Exchange: Comment

Journal of Institutional and Theoretical Economics (JITE), November 27, 2018
by I. Glenn Cohen (Faculty Director)

From the article:  Krawiec opens the article by quoting Alvin Roth’s framing of repugnance as a “distaste for certain kinds of transactions [that] can be a real constraint on markets and… Read More

Experts caution on implications of ‘lost embryos’ lawsuit

BioNews, November 26, 2018
by By Lone Hørlyck, quoting I. Glenn Cohen (Faculty Director)

From the article: "In addition to the potential implications for IVF treatments, considering embryos as persons could be used to argue against abortion rights and embryonic stem cell research. Professor… Read More

For Doctors Who Want To Provide Abortions, Employment Contracts Often Tie Their Hands

NPR, November 26, 2018
by Mara Gordon

Doctors who are opposed to abortions don't have to provide them. Since the 1970s, a series of federal rules have provided clinicians with "conscience protections" that help them keep their… Read More

EXCLUSIVE: Chinese scientists are creating CRISPR babies

MIT Tech Review, November 25, 2018
by Antonio Regolado

When Chinese researchers first edited the genes of a human embryo in a lab dish in 2015, it sparked global outcry and pleas from scientists not to make a baby using the technology, at least for the present.… Read More

Your Medical Devices Are Not Keeping Your Health Data to Themselves

ProPublica, November 21, 2018
by Derek Kravitz and Marshall Allen

Medical devices are gathering more and more data from their users, whether it’s their heart rates, sleep patterns or the number of steps taken in a day. Insurers and medical device makers… Read More

Losing Embryos, Finding Justice

Annals of Internal Medicine, November 20, 2018
by I. Glenn Cohen (Faculty Director), Dov Fox, and Eli Y. Adashi

From the article:  On 3 March 2018, a liquid nitrogen storage tank broke down at University Hospitals Fertility Center in Cleveland, Ohio. More than 950 patients lost over 4000 eggs and embryos (also… Read More

Machine learning in medicine: Addressing ethical challenges

PLOS Medicine, November 6, 2018
by Effy Vayena, Alessandro Blasimme, and I. Glenn Cohen (Faculty Director)

From the article:  A recent United Kingdom survey reports that 63% of the adult population is uncomfortable with allowing personal data to be used to improve healthcare and is unfavorable to artificial… Read More

Canada debates assisted death laws after woman is forced to end life early

The Guardian, November 6, 2018
by Leyland Cecco

For weeks, Audrey Parker had been organizing what she called her “beautiful death”, carefully planning every detail of her final days, and even writing her own obituary. Parker, a television… Read More

Colorado Supreme Court Quotes I. Glenn Cohen

by Justice William W. Hood III, quoting I. Glenn Cohen (Faculty Director)

The Colorado Supreme Court in a dissent by Justice Hood, joined Coats and Samour, quotes I. Glenn Cohen.  From the dissent:  For the non-consenting donor, there are several harms that may… Read More

Response to Open Peer Commentaries on “The Ethics of Smart Pills and Self-Acting Devices

American Journal of Bioethics, Volume 18, October 2018
by Craig M. Klugman, Laura B. Dunn, Jack Schwartz and I. Glenn Cohen (Faculty Director)

From the article:  We thank all of the insightful authors who wrote open peer commentaries to further the conversation about digital medicine that we raised in our article, “The Ethics of Smart… Read More

Patient‐Engaged Research: Choosing the “Right” Patients to Avoid Pitfalls

Hastings Center Report, October 11, 2018
by Emily A. Largent, Holly Fernandez Lynch, Matthew S. McCoy

From the article: To ensure that the information resulting from research is relevant to patients, the Patient‐Centered Outcomes Research Institute eschews the “traditional health research”… Read More

Early career researchers’ perspectives and roles in patient-oriented research

Research Involvement and Engagement, October 9. 2018
by Geneviève Rouleau, Jean-Christophe Bélisle-Pipon (Visiting Researcher), et al.

Complete author list:  Geneviève Rouleau, Jean-Christophe Bélisle-Pipon, Stanislav Birko, Philippe Karazivan, Nicolas Fernandez, Karine Bilodeau, Yi-Sheng Chao,… Read More

From cyborgs to sex robots

Star Tribune, October 3, 2018
by Richard Chin, featuring Francis X. Shen (Senior Fellow)

From the article: Francis Shen spends a lot of time thinking about transhuman cyborgs, brain-wave lie detectors, sex robots and terrorists hacking into devices implanted in our heads. And, no, he’s… Read More

When Your Dreams of Motherhood Are Destroyed

Marie Claire, October 1, 2018
by Kayla Webley Adler, quoting I. Glenn Cohen (Faculty Director)

From the article:  Neither major political party is expected to push for more regulation. Democrats aren’t likely to touch fertility because of how close the issue is to the abortion debate.… Read More

Petrie-Flom Center and Edmond J. Safra Center for Ethics Fellow-in-Residence

Petrie-Flom Center, Applications Due: November 15, 2018

Each year the Edmond J. Safra Center for Ethics at Harvard University hosts several fellows-in-residence. For 2019-20, they are concentrating their fellowships on the Ethics of Technological… Read More

Oversight of Patient-Centered Outcomes Research: Recommendations From a Delphi Panel

Annals of Internal Medicine, September 25, 2018
by Luke Gelinas (Senior Fellow), Joel S. Weissman, Holly Fernandez Lynch, Avni Gupta, Ronen Rozenblum, Emily A. Largent,I. Glenn Cohen (Faculty Director)

From the abstract:  A key aim of patient-centered outcomes research (PCOR) is to generate data that are important to patients by deliberately and extensively involving them in all aspects of research,… Read More

Trump administration launches review of scientific research involving fetal tissue

STAT, September 25, 2018
by Megan Thielking

The Trump administration has launched a comprehensive review of all research that involves fetal tissue, reopening an issue that has galvanized anti-abortion activists but worried scientists who fear… Read More

Giving Malaria a Deadline

New York Times, September 24, 2018
by Nicolas Wade

Malaria is among the world’s worst scourges. In 2016 the disease, which is caused by a parasite and transmitted by mosquitoes, infected 194 million people in Africa and caused 445,000 deaths. But… Read More

Parents Are Leery Of Schools Requiring ‘Mental Health’ Disclosures By Students

WUSF (NPR), September 21, 2018
by Julio Ochoa

Children registering for school in Florida this year were asked to reveal some history about their mental health. The new requirement is part of a law rushed through the state legislature after the February shooting… Read More

Scientists Create Immature Human Eggs From Stem Cells

NPR, September 20, 2018
by Rob Stein

Scientists say they have taken a potentially important — and possibly controversial — step toward creating human eggs in a lab dish. A team of Japanese scientists turned human blood cells into… Read More

Big questions raised by big data

Harvard Law Today, September 20, 2018
by Lewis Rice, featuring Carmel Shachar (Executive Director) and I. Glenn Cohen (Faculty Director)

From the article:  During the introduction to the book launch event for “Big Data, Health Law, and Bioethics,” one of the editors, Harvard Law School Professor I. Glenn… Read More

The Ethics of Smart Pills and Self-Acting Devices

American Journal of Bioethics, September 20, 2018
by Craig M. Klugman, Laura B. Dunn, Jack Schwartz, and I. Glenn Cohen (Faculty Director)

From the abstract:  Digital medicine is a medical treatment that combines technology with drug delivery. The promises of this combination are continuous and remote monitoring, better disease management,… Read More

Smart pills can transmit data to your doctors, but what about privacy?

New Scientist, September 19, 2018
by I. Glenn Cohen (Faculty Director) and Alex Pearlman (Communications Manager)

From the article:  Abilify MyCite, a pill-app combination that can be used to track the ingestion of drugs for bipolar disorder and schizophrenia, was the first such product approved by the US Food… Read More

Labour calls for ban on early foetus sex test

BBC, September 17, 2018
by Amber Haque

[...] Choosing an abortion due to sex is illegal in the UK, apart from some rare exemptions, but it is difficult to detect as women often cite other reasons for having the procedure. In 2015, the government… Read More

Listening to NFL Players On Mental Health

Journal of Clinical Sport Psychology, Volume 12 Issue 3, September 2018
by Sarah A. McGraw, Christopher R. Deubert, Holly Fernandez Lynch, Alixandra Nozzolillo, Lauren Taylor, I. Glenn Cohen (Faculty Director)

When it comes to their careers, current and former NFL players express satisfaction – and frustrations – about their lives both on and off the field. “Life on an Emotional Roller Coaster:… Read More

Petrie-Flom is Hiring! Call for Applications

Petrie-Flom Center, September 2018

General information The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School is seeking student interns for the Fall 2018. Availability to start immediately… Read More

Who’s to blame when a machine botches your surgery?

Quartz, September 10, 2018
by Robert David Hart (quoting W. Nicholson Price II, Academic Fellow Alumnus)

From the article:  Determining the levels of legal responsibility for AIs as a whole is a fairly new area and one that has yet to be seriously tested in court. What’s more, in a health care… Read More

Call for Applications: Petrie-Flom Center Student Internship Program
Petrie-Flom Center, Harvard Law School

Deadline: September 24, 2018

General information The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School is seeking student interns for the Fall 2018 semester. Availability to start immediately… Read More

Petrie-Flom Welcomes 2018-2019 Student Fellows

Petrie-Flom Center, September 10, 2018

We are so excited to welcome a new crop of Student Fellows to the Petrie-Flom Center family. These six students are a fantastic cohort of health law policy, biotechnology, and bioethics scholars who join… Read More

NIH Bioethics Fellowship
Bioethics Department at National Institutes of Health

Deadline: December 31, 2018

From the description: The Department of Bioethics is pleased to offer a limited number of two-year post-doctoral and post-baccalaureate fellowships. Fellows participate in the activities and the intellectual… Read More

A Dangerous Brain

The Marshall Project, August 14, 2018
by Andrew R. Calderon, quoting Francis Shen (Visiting Scholar)

From the article:  To date, neuroprediction has not been admitted into the courtroom or parole hearings. Some scholars, like Thomas Nadelhoffer, a fellow at the Kenan Institute for Ethics at Duke… Read More

Petrie-Flom Welcomes New Precision Medicine Fellow!

Petrie-Flom Center, August 16, 2018

We are excited to announce that Sara Gerke is joining the Petrie-Flom Center's Project on Precision Medicine, Artificial Intelligence, and Law (PMAIL) as our Precision Medicine Fellow. As the Fellow,… Read More

Revisiting the Limits of Professional Autonomy

Harvard Journal of Law and Gender, Vol. 41, No. 1
by Maayan Sudai (Student Fellow Alumna)

From the paper: Social movements that seek to change biomedical policy face the particularly challenging task of effectively contesting the scientific and normative basis used to justify medical professional… Read More

Delinking Reimbursement

Minnesota Law Review, Vol. 102, Issue 6 (July 2018)
by Rachel Sachs (Academic Fellow Alumna)

Introduction: Recently, scholars and policymakers on both sides of the aisle have become interested in the legal and regulatory structures surrounding pharmaceutical approval and reimbursement in this… Read More

Personhood Seeking New Life with Republican Control

Indiana Law Journal, April 2017
by Jonathan F. Will, I. Glenn Cohen (Faculty Director) and Eli Y. Adashi

From the abstract:  Just three days prior to the inauguration of Donald J. Trump as president of the United States, Rep. Jody B. Hice (R-GA) introduced the Sanctity of Human Life Act (H.R. 586), which,… Read More

Moratoria and Innovation in the Reproductive Sciences

Journal of Health & Biomedical Law, 2018
by Russell Spivak, I. Glenn Cohen (Faculty Director) and Eli Y. Adashi

From the abstract:  As progress in the biosciences soldiers forth, new breakthroughs can often be swept up in a common narrative, that is, the narrative of science as a disruptive threat. Responding… Read More

“What Is PER?” Patient Engagement in Research as a Hit

Canadian Journal of Bioethics / Revue canadienne de bioéthique, July 6, 2018, Vol 1, Issue 2
by By Jean-Christophe Bélisle-Pipon (Visiting Researcher), Claudio Del Grande, and Geneviève Rouleau

From the paper: Engaging patients in research conduct and agenda setting is increasingly considered as an ethical imperative, and a way to transcend views of patients as passive subjects by fostering their… Read More

Call for Submissions: Special Issue “Medical Narratives of Ill Health”
Humanities, MDPI

Deadline: January 10, 2019

General Description Humanities special issue: "Medical Narratives of Ill Health" The field of literature and medicine has been steadily growing over the past four decades, solidifying itself as a… Read More

Call for chapter proposals: Representing Abortion
St. Francis Xavier University

Deadline: October 01, 2018

General Description Rosalind Pollack Petchesky argued in 1987 that “feminists and other prochoice advocates have all too readily ceded the visual terrain,” abandoning the field of fetal imagery… Read More

Regulation of Stem Cell Therapy Travel

Current Stem Cell Reports, July 2018
by I. Glenn Cohen and Shelly Simana

From the abstract: Purpose of Review Stem cell therapies (hereinafter: SCT) hold tremendous promise for the treatment of a variety of diseases. Yet, alongside the medical potential, they pose significant… Read More

IRB Oversight of Patient-Centered Outcomes Research: A National Survey of IRB Chairpersons

Journal of Empirical Research on Human Research Ethics, June 14, 2018
by Joel S. Weissman, Eric G. Campbell, I. Glenn Cohen, Holly Fernandez Lynch, Emily A. Largent, Avni Gupta, Ronen Rozenblum, Melissa Abraham, Karen Spike

From the abstract:  Patient-centered outcomes research (PCOR) is becoming increasingly common. However, there is little evidence regarding what novel ethical challenges, if any, are posed by PCOR… Read More

On the Human Right to Health

Human Rights, Democracy, and Legitimacy in a World of Disorder , 2018
by I. Glenn Cohen (Faculty Director)

Faculty Director I. Glenn Cohen has written a chapter in the fortchoming book "Human Rights, Democracy, and Legitimacy in a World of Disorder," (Cambridge University Press, edited by Silja… Read More

Pro-life groups cheer Supreme Court’s refusal to hear medication-induced abortion ban in Arkansas

The Washington Times, May 29, 2018
by Alex Swoyer, quoting I. Glenn Cohen (Faculty Director)

From the article: Planned Parenthood of Arkansas and Eastern Oklahoma sued, arguing the law would halt operations at two of the state’s remaining three abortion clinics. The organization said that… Read More

Facebook’s Health Groups Offer A Lifeline, But Privacy Concerns Linger

Huffington Post, May 28, 2018
by Sarah Elizabeth Richards, quoting I. Glenn Cohen (Faculty Director)

From the article: It’s impossible to expect a true sense of privacy among 55,000 people, but users and bioethicists alike have lingering questions about Facebook’s use of data. “How much… Read More

Call for Abstracts: 2018 PQG Conference
The Program in Quantitative Genomics, Harvard T.H. Chan School of Public Health

Deadline: September 30, 2018

General Description The conference schedule includes time for scientific presentations, as well as a poster session for submitted abstracts. Three abstracts will be selected for Stellar Abstract Awards… Read More

2018 Fulbright Visiting Research Chair in Health Law, Policy and Ethics
Center for Health Law, Policy and Ethics, University of Ottawa

Deadline: August 01, 2018

General Description:  Breakthroughs in health sciences offer tremendous hope to patients and the public, but with progress emerge new legal and ethical challenges. This position allows a scholar to… Read More

Circumvention Medical Tourism and Cutting Edge Medicine

Indiana Journal of Global Legal Studies, May 12, 2018
by I. Glenn Cohen (Faculty Director)

From the article: “Medical Tourism” is the travel of patients from a home country to a destination country for the primary purpose of receiving health care. “Circumvention Tourism”… Read More

Call For Papers: Intersections of Critical Disability Studies and Critical Animal Studies
The Canadian Journal of Disability Studies

Deadline: June 01, 2018

General Description This special issue builds on an emergent body of scholarship located at the intersection of critical disability studies & critical animal studies, shedding light… Read More

The Ethics of Medicaid’s Work Requirements and Other Personal Responsibility Policies

JAMA, May 7, 2018
by Harald Schmidt and Allison K. Hoffman (Academic Fellow Alumna)

From the paper:  Breaking controversial new ground, the Centers for Medicare & Medicaid Services (CMS) recently invited states to consider establishing work requirements as a condition of receiving… Read More

Authorities Use DNA Testing Service to Identify “Golden State Killer” - What Does This Mean for You?

WCIA, The Takeaway, May 7, 2018
by Heather Goldstone & Elsa Partan, quoting I. Glenn Cohen (Faculty Director)

From the article: Late last month, authorities charged a man in Sacramento County, California as the so-called Golden State Killer after tracking him down with a private DNA test company, one… Read More

Valuations of Life: Birth defects, prenatal diagnoses, and disability
Uppsala University, Sweden

Deadline: June 01, 2018

General Description: Definitions of what counts as a valuable life implicitly and explicitly saturate both historical and contemporary narratives about birth defects, prenatal diagnoses, and disability.… Read More

Vaccine against Meningitis

La Presse, April 25, 2018
by Marie-Claude Malboeuf, Suit brought by Jean-Christophe Belisle Pipon (Visiting Researcher)

From the article: Quebec has agreed to pay twice as much as the United Kingdom for a new vaccine against meningitis, the effectiveness of which seemed uncertain. The disclosure of the price paid by Quebec… Read More

Preventing Mitochondrial Diseases

Trends in Molecular Medicine, Volume 24, Issue 5 (May 2018)
by Eli Y. Adashi and I. Glenn Cohen (Faculty Director)

Abstract Mutant mitochondrial DNA gives rise to a broad range of incurable inborn maladies. Prevention may now be possible by replacing the mutation-carrying mitochondria of zygotes or oocytes at risk… Read More

Parenting of the future: Many embryos, each with DNA profile

The Washington Post , April 18, 2018
by Malcolm Ritter, quoting I. Glenn Cohen (Faculty Director)

From the article: Once the genetic profile is done, could it come back to haunt a child if, say, a life insurer or nursing home demanded to see it to assess disease risk? How would the large number of… Read More

Call for Entries: The 19th Annual Henry K. Beecher Prize in Medical Ethics
Center for Bioethics Harvard Medical School

Deadline: May 31, 2018

General Description: The Harvard Medical School Center for Bioethics is pleased to announce a call for submissions for the annual Henry K. Beecher Prize in Medical Ethics. A prize of $1,000 will be awarded… Read More

Bystander risk, social value, and ethics of human research

Science, April 13, 2018, Volume 360, Issue 6385
by S. K. Shah, J. Kimmelman, A. D. Lyerly, H. F. Lynch (Former Executive Director), F. G. Miller, R. Palacios, C. A. Pardo, C. Zorrilla

From the article: Two critical, recurring questions can arise in many areas of research with human subjects but are poorly addressed in much existing research regulation and ethics oversight: How should… Read More

CALL FOR APPLICATIONS! 2018-2019 Petrie-Flom Center Student Fellowship

Petrie-Flom Center, Harvard Law School, August 10, 2018

Please note that this call for applications is closed: The deadline was August 10, 2018. What do a MacArthur Genius award winner, several health law professors at top schools, executive directors… Read More

Surgery Lit by Cellphone: Togo Doctors Strike Over Deplorable Hospitals

The New York Times, April 7, 2018
by Tim McDonnell, quoting I. Glenn Cohen (Faculty Director)

From the article: I. Glenn Cohen, a professor at Harvard Law School and an expert on health law and bioethics, said medical ethicists generally agree that the potential benefits of a doctors’ strike… Read More

On Scarcity and the Value of Clinical Trials

The American Journal of Bioethics, 2018, Issue 4, Volume 18
by Luke Gelinas (Senior Researcher), Holly Fernandez Lynch (Former Executive Director), Barbara E. Bierer, & I. Glenn Cohen (Faculty Director)

From the artice: Allocation of scarce goods and resources is a common concern in the health care context, from intensive care unit (ICU) beds, to extracorporeal membrane oxygenation (ECMO) machines, to… Read More

Assisted Reproduction in Israel: Law, Religion, and Culture

Brill Research Perspectives, March 20, 2018
by Avishalom Westreich

From the article: The theme of this composition is the right to procreate in the Israeli context. Our discussion of this right includes the implementation of the right to procreate, restrictions on the… Read More

Can Lost Embryos Give Rise to a Wrongful-Death Suit?

The Atlantic , April 5, 2018
by Sara Zhang, quoting I. Glenn Cohen (Faculty Director)

From the article: Over a single weekend in March, an unprecedented disaster hit fertility clinics—twice. First came the news that the University Hospitals Fertility Center in Ohio, lost more… Read More

Prevalence of Publicly Available Expanded Access Policies

Clinical Pharmacology & Therapeutics, March 23, 2018
by Emily Jung (Petrie-Flom Student Intern), Patricia J. Zettler, Aaron S. Kesselheim

From the Article: The Food and Drug Administration's expanded access program allows patients with serious or immediately life‐threatening conditions to seek access to experimental drugs and treatments… Read More

Can Rationing through Inconvenience Be Ethical?

Hasting Center Report, Volume 48, Issue 1
by Nir Eyal, Paul L. Romain, and Christopher T. Robertson (Academic Fellow alumnus)

From the Article: In this article, we provide a comprehensive analysis and a normative assessment of rationing through inconvenience as a form of rationing. By “rationing through inconvenience”… Read More

It’s hard to be economically rational when you’re sick

The Hill, March 21, 2018
by Christopher T. Robertson (Academic Fellow alumnus) and Victor Laurion

From the article: We may be in the early days of a changing political ideology. For decades, politicians on both sides have espoused the belief that copayments and other out-of-pocket charges are necessary… Read More

House passes right-to-try on second try

Politico, March 21, 2018
by Sarah Karlin-Smith, quoting Christopher T. Robertson (Academic Fellow alumnus)

From the Article: The House of Representatives passed on party lines Wednesday evening a bill designed to let very sick patients request access to experimental medicines without government oversight. The… Read More

Fulbright Visiting Research Chair in Health Law, Policy and Ethics
University of Ottawa Center for Health Law, Policy and Ethics

Deadline: September 12, 2018

General Description:  Breakthroughs in health sciences offer tremendous hope to patients and the public, but with progress emerge new legal and ethical challenges. This position allows a scholar to… Read More

National Institutes of Health IRB Internship Program Fall 2018
University of Bergen

Deadline: April 22, 2018

General Description: Members of Institutional Review Boards (IRBs), IRB administrators, research ethics committees, tribal governance bodies, and others who are currently employed in positions related… Read More

Harvard Law School Program of Study: Law, Science, & Technology Student Advisory Lunch

by Moderated by Carmel Shachar (Executive Director)

Thursday March 22, 2018 12:00-1:00pm Langdell 225 North classroom, Harvard Law School   This advisory lunch will provide information about courses and experiential opportunities for students… Read More

Brain Scans in the Courts: Prosecutor’s Dream or Civil Rights Nightmare?

Inside Science, March 14, 2018
by James Gaines, quoting Francis Shen (Senior Fellow in Law and Applied Neuroscience)

From the article:  One of the foundations of the U.S. legal system is the Bill of Rights, which enshrines the idea that there are certain individual liberties and inalienable freedoms that governments… Read More

Nicotine and Ethics: 2018 Brocher Summer Academy in Population-level Bioethics
Brocher Foundation, Hermance, Switzerland

Deadline: March 31, 2018

General Description: The Brocher Foundation invites junior faculty, post-docs, advanced graduate students, clinicians and other practitioners to apply for inclusion in the 2018 Brocher Summer Academy in… Read More

Call for Papers: Workshop on Scientific Archives
Carnegie Institution for Science, Washington, D.C.

Deadline: March 29, 2018

Organized by: Committee on the Contemporary Archives of Science and Technology (C-CAST) of the International Council on Archives/Section on University and Research Institution Archives (ICA/SUV) Date: … Read More

Early-career researchers’ views on ethical dimensions of patient engagement in research

BMC Medical Ethics BMC series, 2018 19:21
by Jean-Christophe Bélisle-Pipon (Visiting Researcher) Geneviève Rouleau and Stanislav Birko

From the Article: Increasing attention and efforts are being put towards engaging patients in health research, and some have even argued that patient engagement in research (PER) is an ethical imperative.… Read More

NTM article prize for young authors
NTM Journal of the History of Science, Technology and Medicine

Deadline: April 01, 2018

General Description  The German journal NTM Journal of the History of Science, Technology and Medicine invites submissions for its annual article prize for young authors. Please submit previously… Read More

Payments to Study Participants: Experts Discuss Potential Framework

RAPS, February 27, 2018
by Michael Mezher, featuring NEJM article produced as part of the Harvard Catalyst Project

Members of the Petrie-Flom Center's collaboration with the Regulatory Foundations, Ethics, and Law Program of Harvard Catalyst | The Harvard Clinical and Translational Science… Read More

A Framework for Ethical Payment to Research Participants

NEJM, February 22, 2018
by Luke Gelinas (Clinical Research Ethics Fellow), Emily A. Largent (Student Fellow Alumna), I. Glenn Cohen (Faculty Director), Susan Kornetsky, Barbara

Members of the Petrie-Flom Center's collaboration with the Regulatory Foundations, Ethics, and Law Program of Harvard Catalyst | The Harvard Clinical and Translational Science Center at… Read More

Preventing Mitochondrial Disease

Obstetrics & Gynecology, March 2018 - Volume 131 - Issue 3
by Eli Y. Adashi and I. Glenn Cohen (Faculty Director)

Abstract: In a possible first, the heritable transmission of a fatal mitochondrial DNA disease (Leigh syndrome) may have been prevented by replacing the mutation-bearing mitochondria of oocytes with donated… Read More

Harvard Clinical Bioethics Course
Center for Bioethics Harvard Medical School

Deadline: Open Registration

Course Description This intensive course is designed for members of ethics committees and others interested in ethical aspects of clinical practice. The target audience are physicians, ethics consultants,… Read More

Call for Poster Abstracts: Harvard Annual Bioethics Conference
Harvard Medical School Center for Bioethics

Deadline: February 26, 2018 5:00 PM EST

Harvard Annual Bioethics Conference, April 11-13, 2018 Defining Death: Organ transplantation and the 50-year legacy of the Harvard report on brain death Program Background The 2018 Annual Bioethics… Read More

Summer Programs Yale Interdisciplinary Center for Bioethics
Yale Interdisciplinary Center for Bioethics

Deadline: Until class is full

Programs Offered in 2018 Yale’s Interdisciplinary Center for Bioethics offers a number of educational programs throughout the year.   In the summer of 2018, we will offer two programs:… Read More

Research and Communications Associate
Petrie-Flom Center, Harvard Law School

Deadline: This position has been filled.

Duties & Responsibilities Reporting to the Petrie-Flom Center’s Administrative Director and working closely with the Center’s Executive Director, Faculty Director, and other staff, the… Read More

Physicians, ethicists urge Congress not to pass ‘right to try’ legislation

STAT News, February 1, 2018
by Ike Swetlitz reporting on Holly Fernandez Lynch (Former Executive Director and Academic Fellow Alumna)

From the article: Dozens of doctors, medical ethicists, and lawyers are warning Congress that legislation to allow Americans with life-threatening conditions access to unapproved, experimental drugs risks… Read More

Petrie-Flom Center launches Project on Precision Medicine, Artificial Intelligence, and the Law

Harvard Law Today, January 31, 2018
by Q & A with I. Glenn Cohen (Faculty Director)

The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School and the Center for Advanced Studies in Biomedical Innovation Law (CeBIL) at the University of… Read More

Postdoctoral Research Scholars Program in Bioethics
Harvard Medical School Center for Bioethics

Deadline: March 30, 2018

The Harvard Medical School Center for Bioethics invites applications for the Postdoctoral Research Scholars Program in Bioethics, for appointments commencing in summer/fall 2018. This 1-2 year program… Read More

Call for Papers - New Perspectives in Deaf History

Deadline: March 01, 2018

General Description: This call for papers is for a multi-volume series, with one volume focusing on the histories of deaf people outside the United States and at least one volume focusing on U.S. histories.… Read More

Research Fellow for Precision Medicine
Petrie-Flom Center, Harvard Law School

Deadline: Position has been filled.

Duties & Responsibilities This is a newly created full-time term appointment for a post-doctoral employee needed to support the work of the Petrie-Flom Center on a sponsored research project in collaboration… Read More

The Petrie-Flom Center Launches New Project

Petrie-Flom Center, January 23, 2018

The Project on Precision Medicine, Artificial Intelligence, and the Law will seek to better understand the frontiers of big data in health care diagnostics, through interdisciplinary analysis of important… Read More

Cops, Docs, and Code: A Dialogue between Big Data in Health Care and Predictive Policing

UC Davis Law Review, Vol. 51, No. 437, 2017
by I. Glenn Cohen (Faculty Director) and Harry Graver

Abstract: “Big data” has become the ubiquitous watchword of this decade. Predictive analytics, which is something we want to do with big data -- to use of electronic algorithms to forecast… Read More

Patient-Centered Outcomes Research

The Hastings Center, January-February 2018
by Emily A. Largent (Student Fellow Alumna), Joel S. Weissman, Avni Gupta, Melissa Abraham, Ronen Rozenblum, Holly Fernandez Lynch (Academic Fellow Alumn

Abstract:  The Patient-Centered Outcomes Research Institute (PCORI), the leading research institute in the United States for patient-centered outcomes research (PCOR), funded our multiyear mixed-methods… Read More

It’s time to levy penalties for failing to report clinical trial results

STAT, January 17, 2018
by Holly Fernandez Lynch (Academic Fellow Alumna and former Executive Director)

From the article: I started my first job as an attorney in the fall of 2007, days after President George W. Bush signed the Food and Drug Administration Amendments Act (FDAAA) into law. As part… Read More

Federal Right-to-Try Legislation — Threatening the FDA’s Public Health Mission

NEJM, January 10, 2018
by Steven Joffe and Holly Fernandez Lynch (Academic Fellow Alumna and former Executive Director)

From the article: The Food and Drug Administration (FDA) is the gatekeeper of the country’s drugs and medical devices. Originally created to prevent the misleading of patients, it was later tasked… Read More

Divorced couple take their fight over frozen embryos to Colorado Supreme Court

ABC News, January 10, 2018
by Andrew Fies, quoting I. Glenn Cohen (Faculty Director)

From the story: What happens when the parents who created frozen embryos go to war with each other over whether to procreate with them or destroy them? That's the battle now being waged before the… Read More

PFC Spotlight: Student Fellow Alumna Emily Largent

Petrie-Flom Center, January 9, 2018

Emily Largent, JD, PhD, RN, was Peter Barton Hutt Student Fellow during the 2014-2015 academic year, while a second-year law student at Harvard Law School. Then-Academic Fellow Matthew Lawrence and… Read More

A Big Pharma-funded charity that helps patients pay for drugs just sued the government

Washington Post, January 8, 2018
by Carolyn Y. Johnson, quoting Christopher T. Robertson (Academic Fellow Alumnus)

From the article: These charities help patients out, but they also provide a lucrative philanthropic option for donors. Drug companies get reimbursed by government health programs or private… Read More

India’s Hospitals Are Filling Up With Desperate Americans

Foreign Policy, January 2, 2018
by Daniel Block, quoting I. Glenn Cohen (Faculty Director)

From the article:  Medical tourism thus presents both opportunities and risks. At its best, the industry can help India grow its health care system, using the revenues generated from international… Read More

Explaining the Absence of Surgical Procedure Regulation

Cornell Journal of Law and Public Policy, Vol 27, Issue 189
by Jonathan J. Darrow (Student Fellow Alumnus)

From the paper: Each year in the United States, surgeons perform approximately 64 million surgical procedures, ranging from tooth extraction to open heart surgery.2 Yet, notwithstanding the frequency of… Read More

Fellowship in Bioethics
Harvard Medical School Center for Bioethics

Deadline: March 19, 2018

General Description: The Harvard Medical School Fellowship in Bioethics is a one-year, part-time program committed to developing leaders with an expertise in bioethics. The core of the fellowship is a… Read More

Call for PhD Applications
Collaborative Research Programme in Biomedical Innovation Law (CeBIL), University of Copenhagen

Deadline: Open until filled.

About the programme Supported by a research grant of DKK 35 million from the Novo Nordisk Foundation, the  Collaborative Research Programme in Biomedical Innovation Law (CeBIL) will address and… Read More

Sanofi scandal in the Philippines could spread dangerous mistrust of vaccines

STAT, December 11, 2017
by Ed Silverman, quoting I. Glenn Cohen (Faculty Director)

From the article: Unfortunately, there are indications that the company, which could use a blockbuster product, should have taken its corporate foot off the gas pedal.  And to restore confidence in… Read More

Regulating Black-Box Medicine

Michigan Law Review, Vol. 116, Issue 3
by W. Nicholson Price II (Academic Fellow Alumnus)

From the paper: Data drive modern medicine. And our tools to analyze those data are growing ever more powerful. As health data are collected in greater and greater amounts, sophisticated algorithms based… Read More

2018-2019 Postdoctoral Research Fellowship
Center for Bioethics and Social Sciences in Medicine (CBSSM), University of Michigan-Ann Arbor

Deadline: January 12, 2018

The Center for Bioethics and Social Sciences in Medicine (CBSSM), a multidisciplinary research unit sponsored by the University of Michigan Medical School Dean's Office, the Office of Clinical Affairs,… Read More

2017’s Word Of The Year In Health Law And Bioethics: Uncertainty

Health Affairs, December 8, 2017
by Carmel Shachar (Executive Director) and I. Glenn Cohen (Faculty Director)

Note: This post is the first in a series of Health Affairs posts from the Sixth Annual Health Law Year in P/Review event, held at Harvard Law School on Tuesday, December 12, 2017. … Read More

NOW AVAILABLE! Big Data, Health Law, and Bioethics

Cambridge University Press, March 2018
by Edited by I. Glenn Cohen (Faculty Director), Holly Fernandez Lynch (former Executive Director), Urs Gasser, and Effy Vayena

This edited volume stems from the Petrie-Flom Center’s 2016 annual conference, which brought together leading experts to identify the various ways in which law and ethics intersect with… Read More

FDA-Approved Digital Pill Causes Concerns

KJZZ Radio, November 28, 2017
by Steve Goldstein, interviewing I. Glenn Cohen (Faculty Director)

The first so-called digital pill has been approved by the Food and Drug Administration. It’s a version of the antipsychotic drug Abilify and contains a tiny sensor that will send a signal to a patch… Read More

Germ-Line Gene Editing and Congressional Reaction in Context

Journal of Law and Health, Vol. 30 (2017), Issue 1
by Russell A. Spivak, I. Glenn Cohen (Faculty Director), and Eli Y. Adashi

Abstract: On December 18, 2015, President Obama signed into law a policy rider forestalling the therapeutic modification of the human germ line. The rider, motivated by the science’s potential unethical… Read More

The Debate over Postmortem Sperm Retrieval of Fallen Soldiers

Jerusalem Post, November 22, 2017
by Avishalom Westreich (Visiting Scholar Alumnus)

This essay is based in part on the workshop the Petrie-Flom Center hosted on October 23, 2017, in which then-Visiting Scholar Avishalom Westreich presented his research-in-progress to a diverse group of… Read More

Digital pill offers chance of new life to old drugs

Financial Times, November 22, 2017
by FT Staff, quoting I. Glenn Cohen (Faculty Director)

From the article: Amid broader concerns about how medical information may be used, Proteus says that its product complies with “all applicable laws and standards” on data protection. Patients… Read More

Harvard Forum: Should Older Politicians And Judges Be Tested For Mental Decline?

WBUR, November 17, 2017
by Carey Goldberg, describing the "Dementia and Democracy" event

This article describes the event "Dementia and Democracy: America's Aging Judges and Politicians," held on November 15, 2017 at Harvard Law School.  The speculation spreads every… Read More

First Digital Pill Approved to Worries About Biomedical ‘Big Brother’

New York Times, November 13, 2017
by Pam Belluck, featuring I. Glenn Cohen (Faculty Director)

For the first time, the Food and Drug Administration has approved a digital pill — a medication embedded with a sensor that can tell doctors whether, and when, patients take their medicine. The approval,… Read More

Are There Non-human Persons? Are There Non-person Humans?

TEDx Cambridge, October 12, 2017
by I. Glenn Cohen (Faculty Director)

If we want to live a moral life, how should we treat animals or complex artificial intelligence? What kinds of rights should non-humans have? Harvard Law Professor and world-renowned bioethics expert Glenn… Read More

FASPE Summer Ethics Fellowship for Law Students and Recent Graduates
Fellowships at Auschwitz for the Study of Professional Ethics in Law

Deadline: January 11, 2018

FASPE Law (Fellowships at Auschwitz for the Study of Professional Ethics in Law) is a fully-funded two-week summer program that uses the conduct of lawyers and judges in Nazi Germany as a launching point… Read More

Call for Submissions: Special Issue “Genetic Discrimination and the Law”
Laws

Deadline: February 05, 2018

Description Genetic science and technology are advancing at a fast pace, with scientists continuing to make genetic discoveries with respect to the make-up of the human body, and the cause and effect of… Read More

NIH Bioethics Fellowship, Post-doctoral and Post-baccalaureate
National Institutes of Health

Deadline: Various.

The Department of Bioethics is pleased to offer a limited number of two-year post-doctoral and post-baccalaureate fellowships. Fellows participate in the activities and the intellectual life of our interdisciplinary… Read More

Call for Applications: Graduate Fellowship in Ethics 2018-2019
Harvard University Edmond J. Safra Center for Ethics

Deadline: November 01, 2017

Purpose The Edmond J. Safra Center for Ethics encourages teaching and research about ethical issues in the professions and public life. Its graduate fellowships support outstanding Harvard… Read More

Talking about Death

Boston Review, October 5, 2017
by Frances Kamm (Senior Fellow Alumna)

From the article: We are now seeing projects directed at the general public asking people to consider how they would like to plan for their demise. Such projects can be very worthwhile, since thinking… Read More

Contraceptive Coverage and the Balance Between Conscience and Access

JAMA, October 19, 2017
by Ronit Y. Stahl and Holly Fernandez Lynch (Former Executive Director, Academic Fellow Alumna)

From the article: When the Obama administration included contraception in the essential benefits package to be covered by employer-sponsored health insurance plans under the Affordable Care Act, it sought… Read More

Postdoctoral Fellowships in Advanced Biomedical Ethics
Department of Medical Ethics and Health Policy at the University of Pennsylvania Perelman School of Medicine

Deadline: December 04, 2017

Postdoctoral Fellowships in Advanced Biomedical Ethics and in the Ethical, Legal and Social Implications of Genetics and Genomics The Department of Medical Ethics and Health Policy at the University of… Read More

Call for Submissions: Special Journal Issue to honor Professor John Robertson
Journal of Law and the Biosciences

Deadline: January 15, 2018

Special Issue to honor Professor John Robertson John Robertson, a giant in the field of law and bioethics, passed away earlier this year. To honor him and his legacy the Journal of Law and the Biosciences is… Read More

TEDxCambridge, Featuring Faculty Director I. Glenn Cohen

TEDxCambridge, October 12, 2017, Boston Opera House
by I. Glenn Cohen (Faculty Director)

On October 12, 2017, Petrie-Flom Faculty Director I. Glenn Cohen was a distinguished speaker at TedX Cambridge at the Boston Opera House. TEDxCambridge curates one of the largest TEDx conferences in the… Read More

Opportunities for Organ Donor Intervention Research

The National Academic Press, October 10, 2017
by By I. Glenn Cohen (Faculty Director) and members of the Committee on Issues in Organ Donor Intervention Research

The organ donation and transplantation system strives to honor the gift of donated organs by fully using those organs to save and improve the quality of the lives of their recipients. While most related… Read More

Organ Donor Research: Overcoming Challenges, Increasing Opportunities

JAMA, October 10, 2017
by James F. Childress, reviewing report co-authored by I. Glenn Cohen (Faculty Director)

From the article: A substantial gap exists between the need for organ transplants and the number of transplants performed each year in the United States. In 2016, 27 630 organs were transplanted… Read More

Summer Ethics Fellowship for Law Students and Recent Graduates
Fellowships at Auschwitz for the Study of Professional Ethics

Deadline: January 11, 2018

FASPE (Fellowships at Auschwitz for the Study of Professional Ethics) is now accepting applications for its 2018 Law program.  FASPE Law is a fully-funded, two-week summer… Read More

Paternalism, reasonableness, and neutrality: a response to commentators

Journal of Medical Ethics, September 2017, Vol. 43 No. 9
by Frances Kamm (former Senior Fellow)

From the article (from the commentary on Frances Kamm's earlier article, "Advanced Care and End of Life Care: Some Cautionary Suggestions." I thank the commentators for their consideration of my views… Read More

Harold T. Shapiro Postdoctoral Research Associate in Bioethics
Princeton University

Deadline: November 13, 2017

General Description: The University Center for Human Values invites applications for the Harold T. Shapiro Postdoctoral Fellowship in Bioethics. The Shapiro Fellowship supports outstanding scholars studying… Read More

Fifth National Nursing Ethics Conference Call for Poster Abstracts
Ethics of Caring

Deadline: October 13, 2017

Conference Description: Please consider submitting a poster abstract for review to present at the National Nursing Ethics Conference. The Ethics of Caring is proud to host the fifth National Nursing Ethics… Read More

Science & Technology Policy Fellowships
American Association for the Advancement of Science

Deadline: November 01, 2017

General Information: The online application system is open from May 1 through November 1 for the fellowship class that begins the following September. We accept online application submissions only. Application… Read More

Influence, integrity, and the FDA: An ethical framework

Science, Sep 1, 2017: Vol. 357, Issue 6354, pp. 876-877.
by Spencer Phillips Hey, I. Glenn Cohen (Faculty Director), Eli Y. Adashi, & Aaron S. Kesselheim

Summary: Among the core missions of the U.S. Food and Drug Administration (FDA) are protecting public health by assuring the safety and efficacy of drugs, biologics, and medical devices and advancing public… Read More

Clinical Ethics Fellowship
Center for Medical Ethics & Health Policy at Baylor College of Medicine

Deadline: November 13, 2017

General Description: This competitive 2-year fellowship offers the opportunity to train with the Center’s nationally renowned faculty and staff who lead premier Clinical Ethics Consultation… Read More

Artificial wombs are coming. They could completely change the debate over abortion.

Vox, August 23, 2017
by I. Glenn Cohen (Faculty Director)

From the article: There’s a scientific development on the horizon that could upend the abortion debate: artificial wombs. The research remains preliminary, but in April a group of scientists at the… Read More

How Gene Cloning In Pigs Could Help Humans Fight Disease

Greater Boston (WGBH, Boston), August 15, 2017
by Jim Braude, interviewing I. Glenn Cohen (Faculty Director)

For the next great medical advancement, look not to the test tube, but to the farm. Experiments that were done here in Boston could make it possible to one-day transplant organs from pics into people.… Read More