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Janet Malek, PhD Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX Imagine being a parent and finding out your child is seriously ill. Imagine how it feels to sit in…
By Kayte Spector-Bagdady JD, MBioethics Department of Obstetrics & Gynecology; Research Ethics Service, Center for Bioethics & Social Sciences in Medicine, University of Michigan Medical School, Ann Arbor, MI With recent reports of Google’s data…
By: Leslie E. Wolf, JD, MPH, Georgia State University College of Law, Interim Dean and Distinguished University Professor and Laura M. Beskow, MPH, PhD, Ann Geddes Stahlman Chair in Medical Ethics, Center for Biomedical Ethics…
By Jeffrey R. Botkin, MD, MPH, Professor of Pediatrics and Medical Ethics at University of Utah We are at a critical crossroad in reproductive medicine. How should science and society more broadly manage the powerful…
Persons with disabilities constitute the largest health disparities group in the U.S., but they have largely been absent from the conversations on precision medicine research.
Minority groups risk not benefiting from genomic discoveries to the same degree as individuals of European descent.
Ethical principles of health equity and justice must be examined as these new therapies are developed and progress to first-in-human clinical trials.
Multiple changes are looming in both the doctor’s and the patient’s roles. Here we highlight two of them.
By Marsha Michie, PhD and Megan Allyse, PhD Scientists and bioethicists have been talking a lot recently about CRISPR/Cas9 and related technologies to alter genomes. But the voices of patients and families, especially those with genetic…
By Ellen W. Clayton You recently responded to a TV advertisement by a direct to consumer (DTC) genetic testing company because you wanted to find more of your relatives. The company also offered to send…
