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Part Seven of Seven-Part Blog Series by Patrick Taylor A suggestion runs through the debate on the NPRM to amend the Common Rule that the proposed changes are a tribute to Henrietta Lacks, a necessity…
Part Six of Seven-Part Blog Series by Patrick Taylor Reading the NPRM and its government commentary, one is subtly, slowly led to a sense of inevitability. Arguments from abstract principles emerge, leave a footprint and…
Part Five of Seven-Part Blog Series by Patrick Taylor The preamble to the NPRM justifies requiring consent for data and specimen research by contending that studies indicate that people want to be asked for permission. …
Part Four of Seven-Part Blog Series by Patrick Taylor The development of research benefits depends on research participation. Research participation, in turn, depends on being asked to participate, and how people evaluate what is being…
Part Three of Seven-Part Blog Series by Patrick Taylor In the previous post of this series, we took a look at how comprehensively certain proposed revisions to human subject research regulations would apply and whether…
Part Two of Seven-Part Blog Series by Patrick Taylor The first blog post in this series probably provided a few surprises, but the surprises are just beginning. Can the NPRM to amend the Common Rule…
Part One of Seven-Part Blog Series by Patrick Taylor The recent Apple-FBI controversy has highlighted the fact that our government, obligated to protect our privacy in some contexts, actively undermines it in others. The same…
