Should Users Have Access to Data Collected by Direct-to-Consumer Health Apps?
Should consumers have access to the data that are collected via direct-to-consumer health apps? What real-world challenges might this create?
data privacy
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Read more: Should Users Have Access to Data Collected by Direct-to-Consumer Health Apps? -
Read more: Perspectives on Data Privacy for Direct-to-Consumer Health Apps Perspectives on Data Privacy for Direct-to-Consumer Health Apps
Direct-to-consumer health apps provide a window into key issues in the world of digital health. In this post, respondents consider data privacy concerns.
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Read more: A Proposal for Localized Review to Safeguard Genetic Database Privacy A Proposal for Localized Review to Safeguard Genetic Database Privacy
We must take action to make genetic data sharing more secure and increase the public’s perception of its importance and safety.
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Read more: The Promise and Pitfalls of China’s QR Codes as Health Certificates The Promise and Pitfalls of China’s QR Codes as Health Certificates
Should more countries adopt China’s QR health code approach to combating COVID-19?
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Read more: Beyond HIPAA: A Proposed Self-Policing Framework for Digital Health Products Beyond HIPAA: A Proposed Self-Policing Framework for Digital Health Products
As digital health products proliferate, entities that fall outside HIPAA regulation are collecting vast amounts of biometric information.
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Read more: Deep Phenotyping Could Help Solve the Mental Health Care Crisis Deep Phenotyping Could Help Solve the Mental Health Care Crisis
While moving too quickly with new technologies carries ethical and societal risks, moving too slowly could leave vulnerable people behind.
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Read more: Incidental Findings in Deep Phenotyping Research: Legal and Ethical Considerations Incidental Findings in Deep Phenotyping Research: Legal and Ethical Considerations
What obligations do researchers have to disclose potentially life-altering incidental findings as they happen in real time?
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Read more: Unique Challenges to Informed Consent in Deep Phenotyping Research Unique Challenges to Informed Consent in Deep Phenotyping Research
Obtaining voluntary competent informed consent is a critical aspect to conducting ethical deep phenotyping research.
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Read more: Lessons Learned from Deep Phenotyping Patients with Rare Psychiatric Disorders Lessons Learned from Deep Phenotyping Patients with Rare Psychiatric Disorders
It is important to respect the wishes of the various parties involved when describing patients with potentially stigmatizing diagnoses.
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Read more: “Actionability” and the Ethics of Communicating Results to Study Participants “Actionability” and the Ethics of Communicating Results to Study Participants
What data may be considered “actionable” for the physician to disclose to the patient, and how might this be done?
