This conference was the inaugural event of the Project on Advanced Care and Health Policy, a collaboration between the Coalition to Transform Advanced Care (C-TAC) and the Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School. The event featured policymakers, thought leaders, family caregivers, clinicians, consumer advocates, and others working to identify the timely, practical, and actionable opportunities to transform care for people with advanced illness nearing end-of-life.

Agenda

9:20am, Welcome and Overview of Collaboration

• I. Glenn Cohen, JD, Professor, Harvard Law School and Faculty Director, Petrie-Flom Center
• Holly Fernandez Lynch, JD, MBioethics, Executive Director, Petrie-Flom Center and Faculty, Center for Bioethics, Harvard Medical School
• Mark Sterling, JD, MPP, Senior Fellow, Petrie-Flom Center, Project on Advanced Care and Health Policy and Chief Strategy Officer, C-TAC

9:30am, Serving People, Not Just Patients: Living with an Advanced Illness and Navigating the Health System

• Amy Berman, RN, Senior Program Officer, The John A. Hartford Foundation

9:45am, Why the Time is Right: State and National Perspectives on Building a Movement

• Andrew Dreyfus, President and CEO, Blue Cross Blue Shield of Massachusetts
• Bill Novelli, Co-Chair, C-TAC, Professor, McDonough School of Business, Georgetown University

10:30am, Community Engagement: How Healthcare Reform Is Refocusing Attention on Communities as Partners In Education and Care Delivery

• Moderator: Marian Grant, DNP, ACNP-BC, ACHPN, FPCN, RN, Director, Policy and Professional Development, C-TAC
• Harriet Warshaw, Executive Director, The Conversation Project, a collaboration with the Institute on Healthcare Improvement
• Rev. Tyrone Pitts, Progressive National Baptist Convention, Senior Advisor, C-TAC

11:15am, Break

11:25am, Care Models: Transitioning to a Population Health Approach

• Moderator: Brad Stuart, MD, Chief Medical Officer, C-TAC
• Vicki Jackson, MD, Chief, Division of Palliative Care, Massachusetts General Hospital
• Suzi Johnson, RN, Vice President, Sharp HospiceCare

12:10pm, Remarks on Health Policy Reform

• Eric Schneidewind, President, AARP

12:20pm, Emerging Federal Health Policy Opportunities

• Moderator: Andrew MacPherson, Senior Policy Advisor, C-TAC
• Kristofer L. Smith, MD, MPP, Senior Vice President, Office of Population and Health Management; Medical Director, Northwell Health Solutions
• Bob Sowislo, Government Affairs Officer, U.S. Medical Management

12:55pm, Closing Remarks

• Holly Fernandez Lynch, JD, MBioethics, Executive Director, Petrie-Flom Center and Faculty, Center for Bioethics, Harvard Medical School
• Tom Koutsoumpas, Co-Chair, C-TAC

1:00 – 2:00pm, Networking Lunch Reception

Recording

The Project on Advanced Care and Health Policy is a collaboration between C-TAC and the Petrie-Flom Center focused on development and spread of effective person-centered models of advanced illness care through interdisciplinary analysis of important health law and policy issues. For more information, visit our website.

For more on the need for reforms in health policy to address advanced illness and end-of-life care, check out C-TAC’s report, “Person-Centered Advanced Illness Care across the Continuum.”