Families Matter image

March 18 - 20, 2015
Conferences
2014-2015
Harvard Medical School
Boston, MA
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Program

We often talk, in bioethics, about individual autonomy. Yet our most challenging ethical, legal and clinical controversies in health care often center around family roles and responsibilities: How should we handle parents’ refusals of medically recommended treatment or, conversely, parents’ requests to medicate or surgically alter their children?  What should be known, and by whom, about a child’s genome, especially when genetic information effects other family members? What weight should be given to family interests in decisions about a child’s health care? How should we think about 3-parent embryos? Gamete donors? Gestational mothers? What rights and responsibilities should fathers have with regard to decisions about abortion and adoption, for example, as well as health care decisions for their offspring? Health care decisions might be messier, but maybe they would also be better if we gave more attention to family matters, and how families matter. 

This multidisciplinary program was developed to inform and deliberate with ethicists, health care providers, attorneys and the public about changes in conceptions of the family and medical technologies and practices that challenge moral conventions and contemporary law.  Faculty experts and participants engaged in thoughtful discussion regarding a broad range of ethical and legal issues that arise from new ways of creating and new ways of understanding families and providing health care for expectant parents, growing fetuses, infants, children, adolescents….and their families.  

Target Audience

  • Ethics committee leaders and members, ethics consultants and bioethicists;

  • Pediatricians, obstetricians, gynecologists, neonatologists, fetal surgeons, maternal fetal specialists, and other physicians;

  • Nurses and nurse practitioners working in family health care, pediatric and related health care specialties;

  • Health lawyers, hospital legal counsel, risk managers, and attorneys working in public policy positions related to health care of children and families;

  • Chaplains, psychologists, social workers, therapists and members of the public interested in ethical and legal issues in family health care.

Objectives

  • Explored changes and challenges in social concepts of “family” and the impact these have on health-related ethical decisions and legal parameters;

  • Discussed conflicts of interests and rights of parents, fetuses, children, and adolescents;

  • Applied ethical and legal frameworks for addressing controversies in the medical care of parents and children;

  • Evaluated the implications for children and families of current and future applications of genetic/genomic information, vaccine policy, medically suppressing puberty, and other ethical and legal controversies in obstetric, pediatric, and family health care.

Agenda

Wednesday, March 18

12:00 - 1:00pm, Registration

1:00 - 1:10pm, Welcome and Introduction

1:10 - 2:30pm, Changes and Challenges in the Concept of Family

2:30 - 4:15, Clinical, Ethical, and Legal Aspects of Innovative Reproduction

4:15 - 5:00, Reception and Open Forum

5:00 - 6:30, Open Forum: Family Planning: The Economics, Ethics, and Government Regulation of Family Planning

Panel Talkback:

Thursday, March 19

All panels and sessions will include time for Q & A.

8:00 - 8:30, Breakfast

A continental breakfast will be provided.

8:30 - 10:30am, Children's Health - Whose Responsibility? 

10:30 - 10:45am, Break

10:45am - 12:15pm, Whole Genome Sequencing of Fetuses and Newborns

Panel Talkback:

12:15 - 12:30pm, Break to Pick Up Lunch

A bagged lunch will be provided.

12:30 - 1:15pm, Small Luncheon Group Case Discussions

  1. Request for posthumous sperm retrieval.

  2. Medically delaying puberty of pre-teen with gender dysphoria and intellectual disability.

  3. Parental request or refusal of treatment for handicapped newborns.

1:15 - 1:30pm, Break

1:30 - 3:00pm, Balancing Children's Interests, Parental Preferences, and Medical Recommendations

3:00 - 3:15pm, Break

3:15 - 4:15pm, Concurrent Sessions

4:15 - 4:30pm, Break

4:30 - 5:30pm, Concurrent Sessions (Continued)

5:30 - 6:30pm, Networking Reception

Friday, March 20

All panels and sessions will include time for Q & A.

8:00 - 8:30am, Breakfast

A continental breakfast will be provided.

8:30 - 11:00am, The Role of Families in Health Care

11:00 - 11:15am, Break

11:15am - 12:15pm, Concurrent Sessions

12:15 - 1:30pm, Lunch

1:30 - 2:30pm, Concurrent Sessions (continued)

2:30 - 2:45pm, Break

2:45 - 3:40pm, Shared Decision-Making - Rhetoric or Reality?

3:40 - 4:00pm, Closing Remarks

Cosponsored by the Center for Bioethics at Harvard Medical School and the Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School, with support from the Oswald DeN. Cammann Fund.

Tags

bioethics   biotechnology   health law policy   pediatrics   personhood   reproductive rights   reproductive technologies