A recent US lawsuit highlights crucial challenges at the interface of data utility, patient privacy & data misuse By Timo Minssen (CeBIL, UCPH), Sara Gerke & Carmel Shachar Earlier, we discussed the new suit filed against Google, the University of Chicago (UC), and UChicago Medicine, focusing on the disclosure of patient data from UC to…
By Timo Minssen (CeBIL, UCPH), Sara Gerke & Carmel Shachar A recent US lawsuit highlights crucial challenges at the interface of data utility, patient privacy & data misuse The huge prospects of artificial intelligence and machine learning (ML), as well as the increasing trend toward public-private partnerships in biomedical innovation, stress the importance of an effective…
The move by Memorial Sloan Kettering is an important one, and constitutes a high visibility statement about the need to keep at bay the increasing financialization of science and medicine.
As multitasking now defines modern life, a hugely important question emerges: What will an increasingly distracted brain mean for ethics?
By Mason Marks and Tiffany Li An earlier version of this article was published in STAT. The National Institutes of Health wants your DNA, and the DNA of one million other Americans, for an ambitious project called All of Us. Its goal — to “uncover paths toward delivering precision medicine” — is a good one.…
By Mason Marks Following the Cambridge Analytica scandal, it was reported that Facebook planned to partner with medical organizations to obtain health records on thousands of users. The plans were put on hold when news of the scandal broke. But Facebook doesn’t need medical records to derive health data from its users. It can use…
Join us at yet another webinar with J. Wested at the University of Copenhagen. This time we will debate procedural issues in compulsory licensing with H. Grosse Ruse-Kahn (University of Cambridge) & M. Desai (Eli Lilly). Further information on our webinar series is available at here, here, and below: Procedural Aspects of Compulsory Licensing under Trade-Related Aspects of Intellectual…
By Christopher Robertson Scholars and policymakers have long been concerned that the biomedical science literature — and thus the practice of medicine — is biased by the companies who fund research on their own products. Prior research has shown that industry-funded studies tend to produce results favorable to their company sponsors. One solution is disclosure of industry…
By Katie Stoll, Amanda Mackison, Megan Allyse, and Marsha Michie The booming genetic testing industry has created many new job opportunities for genetic counselors. Within commercial laboratories, genetic counselors work in sales and marketing, variant interpretation, as “medical science liaisons” to clinicians, and providing direct patient care. Although the communication skills and genetics expertise of…
By Shailin Thomas For-profit hospitals have taken their fair share of flack over the years. Much maligned by many in the medical community, they are seen as money-hungry corporate machines that pervert the medical profession by putting the bottom line before patient care. This skepticism of profit-driven hospitals feels right. Medicine has long been the purview of charitable organizations…
