Genetics & Genomics

  • Read more: TODAY, 4/17 at 5 PM! Health Law Workshop with Judith Daar

    TODAY, 4/17 at 5 PM! Health Law Workshop with Judith Daar

    April 17, 2017, 5-7 PM Hauser Hall, Room 104 Harvard Law School, 1575 Massachusetts Ave., Cambridge, MA Download the Presentation: “A Clash at the Petri Dish: Transferring Embryos with Known Genetic Anomalies” Judith Daar is Professor of Law at Whittier Law School with a joint appointment at the UCI School of Medicine. She focuses her teaching and…

  • Read more: DTC Genetic Risk Reports Back on Market

    DTC Genetic Risk Reports Back on Market

    By Kayte Spector-Bagdady, JD, MBE & Michele Gornick, PhD, MA On Thursday, April 6th, the FDA announced that it will allow the direct-to-consumer (DTC) genetic testing company 23andMe to market “Genetic Health Risk” (GHR) tests for 10 diseases or conditions including early-onset Alzheimer’s and Parkinson’s Diseases. This is in addition to 23andMe’s current offering of ancestry,…

  • Read more: Patenting Bioprinting Technologies in the US and Europe – The Fifth Element in the Third Dimension

    Patenting Bioprinting Technologies in the US and Europe – The Fifth Element in the Third Dimension

    By Timo Minssen I am happy to announce the publication of our new working paper on  “Patenting Bioprinting Technologies in the US and Europe – The 5th element in the 3rd dimension.” The paper, which has  been co-authored by Marc Mimler, starts out by describing the state of the art and by examining what sorts of bioprinting inventions…

  • Read more: Will the Recent Workplace Wellness Bill Really Undermine Employee Health Privacy?

    Will the Recent Workplace Wellness Bill Really Undermine Employee Health Privacy?

    By Jessica L. Roberts While the effort to repeal and replace the Affordable Care Act (ACA) has taken center stage, another health-related bill has been making its way through the House without nearly as much attention. On March 2, 2017, Representative Virginia Foxx (R-NC) introduced House Resolution (HR) 1313 on behalf of herself and Representative…

  • Read more: Bold New Policies for The Brave New Biologies: IPRs and Innovation in Synthetic Biology and Gene editing

    Bold New Policies for The Brave New Biologies: IPRs and Innovation in Synthetic Biology and Gene editing

    Research Seminar at the University of Copenhagen debating intellectual property and innovation in synthetic biology, systems biology & gene editing. New technologies in biology offer a brave new world of possibilities. Promising solutions to some of the most urgent challenges faced by humanity: climate change, environmental protection, growing population, renewable energy and improved health care. Scientific…

  • Read more: Genetic counselors, genetic interpreters, and conflicting interests

    Genetic counselors, genetic interpreters, and conflicting interests

    By Katie Stoll, Amanda Mackison, Megan Allyse, and Marsha Michie The booming genetic testing industry has created many new job opportunities for genetic counselors. Within commercial laboratories, genetic counselors work in sales and marketing, variant interpretation, as “medical science liaisons” to clinicians, and providing direct patient care. Although the communication skills and genetics expertise of…

  • Read more: Bill of Health Blog Symposium: How Patients Are Creating the Future of Medicine

    Bill of Health Blog Symposium: How Patients Are Creating the Future of Medicine

    We are pleased to host this symposium featuring commentary from participants in the University of Minnesota’s Consortium on Law and Values in Health, Environment & the Life Sciences event, “How Patients Are Creating Medicine’s Future: From Citizen Science to Precision Medicine.”  Below, Susan M. Wolf tees up the issues.  All posts in the series will…

  • Read more: Citizen-Led Bioethics for the Age of Citizen Science: CRexit, BioEXIT, and Popular Bioethics Uprisings

    Citizen-Led Bioethics for the Age of Citizen Science: CRexit, BioEXIT, and Popular Bioethics Uprisings

    By Barbara J. Evans This post is part of a series on how patients are creating the future of medicine.  The introduction to the series is available here, and all posts in the series are available here. The citizen science movement goes beyond merely letting people dabble in science projects. It involves giving regular people…

  • Read more: Participant Power

    Participant Power

    By Jason Bobe This post is part of a series on how patients are creating the future of medicine.  The introduction to the series is available here, and all posts in the series are available here. Jason Bobe will be participating in an NIH videocast on return of genetic results in the All of Us…

  • Read more: The Wearables Revolution: Personal Health Information as the Key to Precision Medicine

    The Wearables Revolution: Personal Health Information as the Key to Precision Medicine

    By Ernesto Ramirez This post is part of a series on how patients are creating the future of medicine.  The introduction to the series is available here, and all posts in the series are available here. Personal health data has historically been controlled by the healthcare industry. However, much has changed in the last decade….