Regardless of how one defines a longitudinal health record, we might agree that it should follow the patient by being accessible to the physicians and other caregivers designated by the patient “without special effort.”
Amazon’s hit TV show, “Homecoming,” is terrifying because it embraces the truth about how American servicemembers have been used as guinea pigs under the guise of national security.
Alongside the growth of electronic health records, specialized add-on software capacities have also emerged, some of which even ask users “moral” questions. Yet, the importance of these systems is far greater than the problem of patient privacy.
A new paper discusses questions such as: to what extent should data be available for use without a patient’s consent? Should some health data be seen as a kind of public good? What role should patients have in deciding what kind of uses of their data are permissible?
By Mark Dennis Robinson While bioethics has generally understood technologies to be a source of ethical problems, there is relatively little reflection about issues associated with technology’s role in bioethics itself. The move towards electronic consent is one area in technology. While there is substantial research on consent and the consent process the gradual shift…
