Protecting Consumer Privacy in DTC Tissue Testing
The privatization of next-generation medical technologies, especially in regenerative and precision medicine, further muddies the data-protection waters.
23andMe
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Read more: Why We Should Care About the Move from Saliva to Living Cells in Precision Medicine Why We Should Care About the Move from Saliva to Living Cells in Precision Medicine
Could a corporate, direct-to-consumer cell-based testing service be the next 23andme? And what would that mean for patients?
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Read more: State Genetic Privacy Statutes: Good Intentions, Unintended Consequences? State Genetic Privacy Statutes: Good Intentions, Unintended Consequences?
Investigative genetic genealogy is a new and complex law enforcement technique that should not be regulated by accident or as an afterthought.
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Read more: A Proposal for Localized Review to Safeguard Genetic Database Privacy A Proposal for Localized Review to Safeguard Genetic Database Privacy
We must take action to make genetic data sharing more secure and increase the public’s perception of its importance and safety.
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Read more: Online Terms of Use for Genealogy Websites – What’s in the Fine Print? Online Terms of Use for Genealogy Websites – What’s in the Fine Print?
Scientific research is now effectively prohibited by the majority of genealogy websites’ terms of use.
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Read more: Do You Own Your Genetic Test Results? What About Your Temperature? Do You Own Your Genetic Test Results? What About Your Temperature?
Health information should not be treated as property. Instead, we should continue to enhance existing regulatory and liability rules to safeguard individual privacy and data security.
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Read more: Considering Direct-to-Consumer Genetic Testing? Spit with Caution Considering Direct-to-Consumer Genetic Testing? Spit with Caution
By Gali Katznelson A friend and I had been vaguely entertaining the idea of ordering genetic testing kits for some time. Then, Black Friday happened. My friend called me to share that 23andMe was on sale, 50% off, for 1 more hour! Typing our credit card information into Amazon, we tossed around some half-reasoned arguments…
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Read more: The FDA Strikes Again: Its ban on home testing kits is, as usual, likely to do more harm than good The FDA Strikes Again: Its ban on home testing kits is, as usual, likely to do more harm than good
By Richard Epstein Cross-post from PointOfLaw. Richard A. Epstein is a professor of law at NYU Law School, a Senior Fellow at the Hoover Institution, a Senior Lecturer at the University of Chicago and a visiting scholar with the Manhattan Institute’s Center for Legal Policy. His forthcoming book is “The Classical Liberal Constitution,” from Harvard…
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Read more: Dov Fox on the question of “designer babies” Dov Fox on the question of “designer babies”
Bill of Health blogger Dov Fox was quoted in the recent article “Genetic-testing patent raises concerns about ‘designer babies’.” “‘Some people might say this is in some respects similar to dating websites to the extent you look for traits in somebody you want to have children with,’ said Dov Fox, a law professor at the…