Protecting Consumer Privacy in DTC Tissue Testing
The privatization of next-generation medical technologies, especially in regenerative and precision medicine, further muddies the data-protection waters.
data security
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Read more: Why We Should Care About the Move from Saliva to Living Cells in Precision Medicine Why We Should Care About the Move from Saliva to Living Cells in Precision Medicine
Could a corporate, direct-to-consumer cell-based testing service be the next 23andme? And what would that mean for patients?
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Read more: Governing Health Data for Research, Development, and Innovation: The Missteps of the European Health Data Space Proposal Governing Health Data for Research, Development, and Innovation: The Missteps of the European Health Data Space Proposal
Although well intentioned, there are aspects of the proposal for a Regulation on the European Health Data Space that require further debate.
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Read more: The International Weaponization of Health Data The International Weaponization of Health Data
As countries become more sensitive to the risks of sharing their citizens’ health data, international research collaborations will become more difficult.
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Read more: Who Owns the Data Collected by Direct-to-Consumer Health Apps? Who Owns the Data Collected by Direct-to-Consumer Health Apps?
Who owns the data that are collected via direct-to-consumer health apps? Who should own that data?
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Read more: Should Users Have Access to Data Collected by Direct-to-Consumer Health Apps? Should Users Have Access to Data Collected by Direct-to-Consumer Health Apps?
Should consumers have access to the data that are collected via direct-to-consumer health apps? What real-world challenges might this create?
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Read more: Perspectives on Data Privacy for Direct-to-Consumer Health Apps Perspectives on Data Privacy for Direct-to-Consumer Health Apps
Direct-to-consumer health apps provide a window into key issues in the world of digital health. In this post, respondents consider data privacy concerns.
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Read more: A Proposal for Localized Review to Safeguard Genetic Database Privacy A Proposal for Localized Review to Safeguard Genetic Database Privacy
We must take action to make genetic data sharing more secure and increase the public’s perception of its importance and safety.
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Read more: Beyond HIPAA: A Proposed Self-Policing Framework for Digital Health Products Beyond HIPAA: A Proposed Self-Policing Framework for Digital Health Products
As digital health products proliferate, entities that fall outside HIPAA regulation are collecting vast amounts of biometric information.
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Read more: How to Secure Our Digital Health Infrastructure Against Cyber Attacks How to Secure Our Digital Health Infrastructure Against Cyber Attacks
It is incumbent upon our institutions to proactively guard against threats to our digital health infrastructure.
