We May Not ‘Own’ Our Bodies. Should We?
The property law approach to ownership does not draw hard lines with respect to biological materials like tissue.
Direct-to-Consumer
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Read more: Protecting Consumer Privacy in DTC Tissue Testing Protecting Consumer Privacy in DTC Tissue Testing
The privatization of next-generation medical technologies, especially in regenerative and precision medicine, further muddies the data-protection waters.
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Read more: Why We Should Care About the Move from Saliva to Living Cells in Precision Medicine Why We Should Care About the Move from Saliva to Living Cells in Precision Medicine
Could a corporate, direct-to-consumer cell-based testing service be the next 23andme? And what would that mean for patients?
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Read more: State Genetic Privacy Statutes: Good Intentions, Unintended Consequences? State Genetic Privacy Statutes: Good Intentions, Unintended Consequences?
Investigative genetic genealogy is a new and complex law enforcement technique that should not be regulated by accident or as an afterthought.
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Read more: Should We Regulate Direct-to-Consumer Health Apps? Should We Regulate Direct-to-Consumer Health Apps?
Over 318,000 health apps are available in app stores, but only a fraction are regulated by the U.S. Food and Drug Administration.
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Read more: Mitigating Bias in Direct-to-Consumer Health Apps Mitigating Bias in Direct-to-Consumer Health Apps
How can we mitigate biases in AI-based health care? And how can we ensure that AI improves health care, rather than augmenting existing disparities?
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Read more: Who Owns the Data Collected by Direct-to-Consumer Health Apps? Who Owns the Data Collected by Direct-to-Consumer Health Apps?
Who owns the data that are collected via direct-to-consumer health apps? Who should own that data?
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Read more: Should Users Have Access to Data Collected by Direct-to-Consumer Health Apps? Should Users Have Access to Data Collected by Direct-to-Consumer Health Apps?
Should consumers have access to the data that are collected via direct-to-consumer health apps? What real-world challenges might this create?
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Read more: Perspectives on Data Privacy for Direct-to-Consumer Health Apps Perspectives on Data Privacy for Direct-to-Consumer Health Apps
Direct-to-consumer health apps provide a window into key issues in the world of digital health. In this post, respondents consider data privacy concerns.
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Read more: A Proposal for Localized Review to Safeguard Genetic Database Privacy A Proposal for Localized Review to Safeguard Genetic Database Privacy
We must take action to make genetic data sharing more secure and increase the public’s perception of its importance and safety.
