European Skew in Genetic Research Databases Won’t Abate Without More Concerted Effort
Continued efforts to increase diversity in genetic research are needed.

Continued efforts to increase diversity in genetic research are needed.
There is an increasing drumbeat of support for an ethical and legal duty for physicians to reinterpret genetic test results.
By Kayte Spector-Bagdady JD, MBioethics Department of Obstetrics & Gynecology; Research Ethics Service, Center for Bioethics & Social Sciences in Medicine, University of Michigan Medical School, Ann Arbor, MI With recent reports of Google’s data deals with Ascension health and the University of Chicago, there has been a lot of attention paid recently to the…
By: Leslie E. Wolf, JD, MPH, Georgia State University College of Law, Interim Dean and Distinguished University Professor and Laura M. Beskow, MPH, PhD, Ann Geddes Stahlman Chair in Medical Ethics, Center for Biomedical Ethics and Society, Vanderbilt University Medical Center In our article, Genomic databases, subpoenas, and Certificates of Confidentiality, published in Genetics in…
By Jeffrey R. Botkin, MD, MPH, Professor of Pediatrics and Medical Ethics at University of Utah We are at a critical crossroad in reproductive medicine. How should science and society more broadly manage the powerful new technologies that can alter the genes of human embryos? In a recent paper published in Genetics in Medicine, the…
By Michael Mackley It took nearly thirteen years and an army of scientists to generate the first sequence of the human genome. Now, patients around the world are having their genomes sequenced every day. Since the first sequence was unveiled in 2003, the cost of whole-genome sequencing (WGS) has dropped from almost $1 billion to less…