European Skew in Genetic Research Databases Won’t Abate Without More Concerted Effort
Continued efforts to increase diversity in genetic research are needed.
genomics
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Read more: European Skew in Genetic Research Databases Won’t Abate Without More Concerted Effort -
Read more: Reclassification of Genetic Test Results: Potential Time Bombs in the Medical Record? Reclassification of Genetic Test Results: Potential Time Bombs in the Medical Record?
There is an increasing drumbeat of support for an ethical and legal duty for physicians to reinterpret genetic test results.
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Read more: Transplant Genomics: Ethical, Legal, and Social Implications Transplant Genomics: Ethical, Legal, and Social Implications
Advances in genetic and genomic studies have identified an increasing number of novel biomarkers of potential use in transplant-related care.
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Read more: Assessing genetic relationships between academia and industry Assessing genetic relationships between academia and industry
By Kayte Spector-Bagdady With recent reports of Google’s data deals with Ascension health and the University of Chicago, there has been a lot of attention paid recently to the sharing and use of health data by unexpected entities. But we know that patients are uncomfortable when hospitals “commercialize” or sell their health data or biospecimens…
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Read more: DNA databases, cracking crimes, and confidentiality DNA databases, cracking crimes, and confidentiality
By Leslie E. Wolf, JD, MPH and Laura M. Beskow, MPH, PhD In our article, Genomic databases, subpoenas, and Certificates of Confidentiality, published in Genetics in Medicine, the official journal of the American College of Medical Genetics and Genomics (ACMG), we considered the protections available to research genomic databases in light of law enforcement’s use…
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Read more: Time to Ban Heritable Genome Editing Time to Ban Heritable Genome Editing
By Jeffrey R. Botkin We are at a critical crossroad in reproductive medicine. How should science and society more broadly manage the powerful new technologies that can alter the genes of human embryos? In a recent paper published in Genetics in Medicine, the official journal of the American College of Medical Genetics and Genomics (ACMG),…
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Read more: Considering stakeholders in policy around secondary findings in genomics Considering stakeholders in policy around secondary findings in genomics
By Michael Mackley It took nearly thirteen years and an army of scientists to generate the first sequence of the human genome. Now, patients around the world are having their genomes sequenced every day. Since the first sequence was unveiled in 2003, the cost of whole-genome sequencing (WGS) has dropped from almost $1 billion to less…