Incidental Findings in Deep Phenotyping Research: Legal and Ethical Considerations
What obligations do researchers have to disclose potentially life-altering incidental findings as they happen in real time?
incidental findings
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By Kyle B. Brothers You have a rare illness that seems to have a genetic cause. For years you have moved from geneticist to geneticist looking for the cause of your illness, hoping that by finding the precise genetic cause you will discover ways to alleviate your symptoms. You have had five or six genetic tests,…