Responsibly Developing Gene Drives: The GeneConvene Global Collaborative
Researchers believe that gene drives could eliminate vector-borne diseases, kill off invasive species, and combat pesticide resistance.
Genetics & Genomics
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Read more: Legislative Success in FL Suggests Time is Ripe for Further Genetic Nondiscrimination Protections Legislative Success in FL Suggests Time is Ripe for Further Genetic Nondiscrimination Protections
Florida’s recent legislation highlights there is continued bipartisan interest in addressing concerns of genetic discrimination in insurance.
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Read more: Research Reveals Potential Concerns About Genetic Testing for Suicide Risk Research Reveals Potential Concerns About Genetic Testing for Suicide Risk
Direct-to-consumer genetic tests will soon be able to provide scores that estimate suicide risk, a prospect that raises ethical questions.
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Read more: Previvorship and the Legal Doctrine of Informed Consent: Video with Valerie G. Koch Previvorship and the Legal Doctrine of Informed Consent: Video with Valerie G. Koch
In this video, Valerie Gutmann Koch gives a preview of her paper, “Previvorship and the Legal Doctrine of Informed Consent.”
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Read more: Responsibility, culpability, and parental views on genomic testing for seriously ill children Responsibility, culpability, and parental views on genomic testing for seriously ill children
By Janet Malek, PhD Imagine being a parent and finding out your child is seriously ill. Imagine how it feels to sit in a chair in the doctor’s office and hear the news that your child has cancer. Imagine the worry and guilt you might feel and how these thoughts and emotions might shape your…
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Read more: Assessing genetic relationships between academia and industry Assessing genetic relationships between academia and industry
By Kayte Spector-Bagdady With recent reports of Google’s data deals with Ascension health and the University of Chicago, there has been a lot of attention paid recently to the sharing and use of health data by unexpected entities. But we know that patients are uncomfortable when hospitals “commercialize” or sell their health data or biospecimens…
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Read more: DNA databases, cracking crimes, and confidentiality DNA databases, cracking crimes, and confidentiality
By Leslie E. Wolf, JD, MPH and Laura M. Beskow, MPH, PhD In our article, Genomic databases, subpoenas, and Certificates of Confidentiality, published in Genetics in Medicine, the official journal of the American College of Medical Genetics and Genomics (ACMG), we considered the protections available to research genomic databases in light of law enforcement’s use…
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Read more: Time to Ban Heritable Genome Editing Time to Ban Heritable Genome Editing
By Jeffrey R. Botkin We are at a critical crossroad in reproductive medicine. How should science and society more broadly manage the powerful new technologies that can alter the genes of human embryos? In a recent paper published in Genetics in Medicine, the official journal of the American College of Medical Genetics and Genomics (ACMG),…
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Read more: Uncertainty and Immutability: Arguments for Genetic Nondiscrimination Uncertainty and Immutability: Arguments for Genetic Nondiscrimination
By Kaitlyn Dowling, based on research by the Cyberlaw Clinic at the Berkman Klein Center for Internet & Society In a year-long series on Bill of Health, we’ll be exploring the legal scholarship on genetic non- discrimination. We’ll talk more about GINA and state laws protecting citizens from genetic discrimination. We hope these posts help…
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Read more: The End of Privacy? The End of Privacy?
By Rachele Hendricks-Sturrup “Any idea we had about privacy is over,” says Dr. Julia Creet, leading international scholar in Cultural Memory Studies, Professor of English at York University, and author of the upcoming book, The Genealogical Sublime. In 2017, Dr. Creet received a York Research Leader Award in part for her investigative work and documentary…