Genetics & Genomics

  • Read more: The (Possible) “Dark Side” of Gene Editing Technologies

    The (Possible) “Dark Side” of Gene Editing Technologies

    By Shelly Simana Gene editing technologies enable people to directly change their DNA sequence by adding, removing, or replacing DNA bases. Today, for the first time, as Jennifer Doudna and Samuel Sternberg announced in their book, A Crack in Creation: Gene Editing and the Unthinkable Power to Control Evolution, people “possess the ability to edit not only…

    Black and white photo of a line of dominoes toppling over
  • Read more: The (Ante-Mortem) Interest in Genetic Continuity

    The (Ante-Mortem) Interest in Genetic Continuity

    By Shelly Simana Omri Shahar was killed in a car accident when he was 25 years old. At his death, Omri’s parents petitioned the Israeli family court for posthumous sperm retrieval. The request was approved yet, one year later, they submitted an additional request—to use the sperm to fertilize a donated egg, implant the embryo in a…

    A family of four, two parents and two children, walk down the beach together at sunset.
  • Read more: How the Internet and The Mapping of the Human Genome Disrupted the Teaching of Health Law: Does The 21st Century Really Change Everything?

    How the Internet and The Mapping of the Human Genome Disrupted the Teaching of Health Law: Does The 21st Century Really Change Everything?

    By Jennifer S. Bard This piece was part of a symposium featuring commentary from participants in the Center for Health Policy and Law’s annual conference, Promises and Perils of Emerging Health Innovations, held on April 11-12, 2019 at Northeastern University School of Law. The symposium was originally posted through the Northeastern University Law Review Online Forum. Promises and…

    DNA sequence
  • Read more: Genetic Discrimination in Housing and Lending: What’s the Risk?

    Genetic Discrimination in Housing and Lending: What’s the Risk?

    By Kaitlyn Dowling, based on research by the Cyberlaw Clinic at the Berkman Klein Center for Internet & Society In a year-long series on Bill of Health, we’ll be exploring the legal scholarship on genetic non-discrimination. We’ll talk more about GINA and state laws protecting citizens from genetic discrimination. We hope these posts help shed…

    Illustration of a street lined with houses
  • Read more: The Birth of GINA: An Interview with Jeremy Gruber

    The Birth of GINA: An Interview with Jeremy Gruber

    By Kaitlyn Dowling In a new, year-long series on Bill of Health, we’ll be exploring the legal scholarship on genetic non-discrimination. We’ll talk more about GINA and state laws protecting citizens from genetic discrimination. We hope these posts help shed light on this complex and ever-more-relevant area for legal scholars, policymakers, and the public at…

    The letters A, G, C, T in different colors repeated on a white background
  • Read more: Screening vs. Diagnostics: Can Preventive Genomics Clinics Help Healthy Patients?

    Screening vs. Diagnostics: Can Preventive Genomics Clinics Help Healthy Patients?

    By Emily Quian Preventive health clinics at large academic medical centers are one of many changes that allow individuals to be in the driver’s seat of their own health care. While many of these programs have existed for quite some time under the guise of an “executive health clinic” or “executive health services,” the introduction…

    Scientist analyzes DNA gel used in genetics, forensics, drug discovery, biology and medicine
  • Read more: Genetic Discrimination in Education: What’s the Risk?

    Genetic Discrimination in Education: What’s the Risk?

    By Kaitlyn Dowling, based on research by the Cyberlaw Clinic at the Berkman Klein Center for Internet & Society In a new, year-long series on Bill of Health, we’ll be exploring the legal scholarship on genetic non-discrimination. We’ll talk more about GINA and state laws protecting citizens from genetic discrimination. We hope these posts help…

    books
  • Read more: What happens when assisted reproductive technology agreements break down?

    What happens when assisted reproductive technology agreements break down?

    By Sarah Alawi My name is Sarah Alawi; I’m an LLM Student at Harvard Law School, from New Zealand. I am excited to contribute to the Petrie-Flom Blog as a Petrie-Flom Student Fellow. My area of interest is assisted reproductive technology (ART), although I intend to use this forum to write on a broad range…

    Photograph of surrogate showing parents-to-be ultrasound pictures
  • Read more: Legislating Genetic Non-Discrimination: What Is GINA and Why Does It Matter?

    Legislating Genetic Non-Discrimination: What Is GINA and Why Does It Matter?

    By John Novembre, Mason Kortz, Kaitlyn Dowling In a new, year-long series on Bill of Health, we’ll be exploring the legal scholarship on genetic non-discrimination. We’ll talk more about GINA and state laws protecting citizens from genetic discrimination. We hope these posts help shed light on this complex and ever-more-relevant area for legal scholars, policymakers,…

    Image of genome sequence map
  • Read more: Establishing Standards for Gene Editing: Initial Steps from Private and Public Actors

    Establishing Standards for Gene Editing: Initial Steps from Private and Public Actors

    By Phebe Hong Nine months have passed since the startling news broke in November 2018 that Chinese researcher He Jiankui had used CRISPR/Cas9 to genetically modify the embryos of twin girls. The controversial news spurred the scientific and regulatory community into action. In late August 2019, two influential organizations — one from the private sector…

    Illustration of a scientist editing a DNA strand