Engendering Equity in Biomedical Research by Meeting Communities Where They Are
What if researchers took more time to harness their power and training to elevate and mobilize the voices of the communities they study?
Informed Consent
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Read more: Should Users Have Access to Data Collected by Direct-to-Consumer Health Apps? Should Users Have Access to Data Collected by Direct-to-Consumer Health Apps?
Should consumers have access to the data that are collected via direct-to-consumer health apps? What real-world challenges might this create?
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Read more: Perspectives on Data Privacy for Direct-to-Consumer Health Apps Perspectives on Data Privacy for Direct-to-Consumer Health Apps
Direct-to-consumer health apps provide a window into key issues in the world of digital health. In this post, respondents consider data privacy concerns.
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Read more: Call for Abstracts — 2022 Petrie-Flom Center Annual Conference: Diagnosing in the Home Call for Abstracts — 2022 Petrie-Flom Center Annual Conference: Diagnosing in the Home
Contribute to the 2022 Petrie-Flom Center Annual Conference and subsequent book project!
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Read more: Monthly Round-Up of What to Read on Pharma Law and Policy Monthly Round-Up of What to Read on Pharma Law and Policy
Interesting empirical studies, policy analyses, and editorials on health law and policy issues from the month of April 2021.
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Read more: Beyond HIPAA: A Proposed Self-Policing Framework for Digital Health Products Beyond HIPAA: A Proposed Self-Policing Framework for Digital Health Products
As digital health products proliferate, entities that fall outside HIPAA regulation are collecting vast amounts of biometric information.
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Read more: Deep Phenotyping Could Help Solve the Mental Health Care Crisis Deep Phenotyping Could Help Solve the Mental Health Care Crisis
While moving too quickly with new technologies carries ethical and societal risks, moving too slowly could leave vulnerable people behind.
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Read more: Incidental Findings in Deep Phenotyping Research: Legal and Ethical Considerations Incidental Findings in Deep Phenotyping Research: Legal and Ethical Considerations
What obligations do researchers have to disclose potentially life-altering incidental findings as they happen in real time?
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Read more: Unique Challenges to Informed Consent in Deep Phenotyping Research Unique Challenges to Informed Consent in Deep Phenotyping Research
Obtaining voluntary competent informed consent is a critical aspect to conducting ethical deep phenotyping research.
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Read more: Infants Born Through Surrogacy Contracts Cannot Be Canceled or Returned Infants Born Through Surrogacy Contracts Cannot Be Canceled or Returned
Can intended parents who enter into a surrogacy contract change their mind once a pregnancy is already progressing?
