Data Privacy

  • Read more: The End of Privacy?

    The End of Privacy?

    By Rachele Hendricks-Sturrup “Any idea we had about privacy is over,” says Dr. Julia Creet, leading international scholar in Cultural Memory Studies, Professor of English at York University, and author of the upcoming book, The Genealogical Sublime. In 2017, Dr. Creet received a York Research Leader Award in part for her investigative work and documentary…

    Illustration of a man and a woman standing in front of a DNA helix
  • Read more: How the Internet and The Mapping of the Human Genome Disrupted the Teaching of Health Law: Does The 21st Century Really Change Everything?

    How the Internet and The Mapping of the Human Genome Disrupted the Teaching of Health Law: Does The 21st Century Really Change Everything?

    By Jennifer S. Bard This piece was part of a symposium featuring commentary from participants in the Center for Health Policy and Law’s annual conference, Promises and Perils of Emerging Health Innovations, held on April 11-12, 2019 at Northeastern University School of Law. The symposium was originally posted through the Northeastern University Law Review Online Forum. Promises and…

    DNA sequence
  • Read more: Measuring Health Privacy – Part II

    Measuring Health Privacy – Part II

    This piece was part of a symposium featuring commentary from participants in the Center for Health Policy and Law’s annual conference, Promises and Perils of Emerging Health Innovations, held on April 11-12, 2019 at Northeastern University School of Law. The symposium was originally posted through the Northeastern University Law Review Online Forum. Promises and Perils of Emerging Health…

    Illustration of a person running away carrying "stolen" 1's and 0's
  • Read more: Measuring Health Privacy – Part I

    Measuring Health Privacy – Part I

    This piece was part of a symposium featuring commentary from participants in the Center for Health Policy and Law’s annual conference, Promises and Perils of Emerging Health Innovations, held on April 11-12, 2019 at Northeastern University School of Law. The symposium was originally posted through the Northeastern University Law Review Online Forum. Promises and Perils of Emerging Health…

    Illustration of cascading 1's and 0's, blue text on a black background
  • Read more: A Delicate Balance: Proposed Regulations May Upset the Tension between Accessibility and Privacy of Health Information

    A Delicate Balance: Proposed Regulations May Upset the Tension between Accessibility and Privacy of Health Information

    This piece was part of a symposium featuring commentary from participants in the Center for Health Policy and Law’s annual conference, Promises and Perils of Emerging Health Innovations, held on April 11-12, 2019 at Northeastern University School of Law. The symposium was originally posted through the Northeastern University Law Review Online Forum. Promises and Perils of Emerging Health…

    Doctor types on a laptop
  • Read more: Genetic Discrimination in Housing and Lending: What’s the Risk?

    Genetic Discrimination in Housing and Lending: What’s the Risk?

    By Kaitlyn Dowling, based on research by the Cyberlaw Clinic at the Berkman Klein Center for Internet & Society In a year-long series on Bill of Health, we’ll be exploring the legal scholarship on genetic non-discrimination. We’ll talk more about GINA and state laws protecting citizens from genetic discrimination. We hope these posts help shed…

    Illustration of a street lined with houses
  • Read more: ACCESS Act Points the Way to a Post-HIPAA World

    ACCESS Act Points the Way to a Post-HIPAA World

    By Adrian Gropper The October 22 announcement starts with: “U.S. Sens. Mark R. Warner (D-VA), Josh Hawley (R-MO) and Richard Blumenthal (D-CT) will introduce the Augmenting Compatibility and Competition by Enabling Service Switching (ACCESS) Act, bipartisan legislation that will encourage market-based competition to dominant social media platforms by requiring the largest companies to make user…

    Diverse crowd of adults on a bus, all using smartphones
  • Read more: Nudges or Shoves in the Secondary Use of Health Data: What is the More Desirable Approach? (Part 2)

    Nudges or Shoves in the Secondary Use of Health Data: What is the More Desirable Approach? (Part 2)

    By Marcelo Corrales Compagnucci, Janos Meszaros & Timo Minssen This post is the second part in a two-part series about nudge theory, health data, and the U.K.’s National Data Opt-out System. You can read the first part here.  Governments are always actively trying to improve their health care systems, and the secondary use of health…

    Photograph of a doctor in blue scrubs overlaid with an illustration of a padlock