Data Privacy

  • Read more: Not Just Any Week in Privacy

    Not Just Any Week in Privacy

    By Nicolas Terry Privacy is never easy to think about. This week it became harder. Two pieces framed my week. First, Eben Moglen’s essay in The Guardian (based on his Columbia talks from late last year) took my breath away; glorious writing and stunning breadth combined to deliver a desperately sad (but not entirely hopeless) message about government…

  • Read more: DUE 6/3: Call for Abstracts: Emerging Issues and New Frontiers for FDA Regulation

    DUE 6/3: Call for Abstracts: Emerging Issues and New Frontiers for FDA Regulation

    By The Petrie-Flom Center                                 The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School and the Food and Drug Law Institute are pleased to announce an upcoming collaborative academic symposium: Emerging Issues and New Frontiers for FDA Regulation Monday, October 20,…

  • Read more: A Bad Debt That Will Shake Big Data

    A Bad Debt That Will Shake Big Data

    By Nicolas Terry A resident of Spain allegedly owed back taxes triggering attachment proceedings. The local newspaper published the details of an upcoming auction of his property in early 1998. At some point the issue was settled. However, the matter was not forgotten—the newspaper was online and a Google search of the gentleman’s name returned this…

  • Read more: Call for Abstracts: Emerging Issues and New Frontiers for FDA Regulation

    Call for Abstracts: Emerging Issues and New Frontiers for FDA Regulation

    By The Petrie-Flom Center       The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School and the Food and Drug Law Institute are pleased to announce an upcoming collaborative academic symposium: Emerging Issues and New Frontiers for FDA Regulation Monday, October 20, 2014  Washington, DC We are currently seeking…

  • Read more: A More Transparent System for Clinical Trials Data in Europe – Mind the Gaps!

    A More Transparent System for Clinical Trials Data in Europe – Mind the Gaps!

    By Timo Minssen Following the approval of the European Parliament (EP) earlier last month, the Council of the European Union (the Council) adopted on 14 April 2014 a “Regulation on clinical trials on medicinal products for human use” repealing Directive 2001/20/EC.  As described in a press-release, the new law: “aims to remedy the shortcomings of…

  • Read more: Diagnosing Mental Disorders from Internet Use

    Diagnosing Mental Disorders from Internet Use

    By Nathaniel Counts We live in a time when increasingly our personal information is publicly available on the internet.  This personal information includes our names and phone numbers, things we’ve written and things we’ve done, along with a good deal of information that only exists because we interact with others on the internet – thoughts…

  • Read more: The AOL Babies: Our Healthcare Crisis in a Nut

    The AOL Babies: Our Healthcare Crisis in a Nut

    By Nicolas Terry Cross-posted from HealthLawProf Blog. Where does one start with AOL CEO Armstrong’s ridiculous and unfeeling justifications for changes in his company’s 401(k) plan. Cable TV and Twitter came out of the blocks fast with the obvious critiques. And the outrage only increased after novelist Deanna Fei took to Slate to identify her daughter as one of…

  • Read more: Big Week for Big Data

    Big Week for Big Data

    By Nicolas Terry For privacy advocates the last week contained something of a gut-check when the UK’s splendidly descriptive Health and Social Care Information Centre announced something of a bonanza for big data companies; the NHS’s care.data program, here, will make anonymized clinical data broadly available to researchers and commercial interests with few limitations, here. For…

  • Read more: Pit Crews with Computers: Can Health Information Technology Fix Fragmented Care?

    Pit Crews with Computers: Can Health Information Technology Fix Fragmented Care?

    By Nicolas Terry I recently posted this draft on SSRN. Feedback much appreciated. Here is the abstract: Fragmentation and lack of coordination remain as some of the most intractable problems facing health care. Attention has often alighted on the promise of Health care Information Technology not least because IT has had such positive impact on…

  • Read more: PRIM&R 2013 Advancing Ethical Research conference report: Who is responsible for the body?

    PRIM&R 2013 Advancing Ethical Research conference report: Who is responsible for the body?

    By Lauren A. Taylor, Coordinator for Health and Religion in the Global Context, Harvard Divinity School and co-author of The American Health Care Paradox: Why Spending More Is Getting Us Less(PublicAffairs, 2013). Who is responsible for the stewardship of the body? What about the body’s tissue? Or its blood? While many people suggest that each individual owns…