Data Privacy

  • Read more: Art Caplan on the NIH’s Agreement Regarding Control of Henrietta Lacks’ Cells

    Art Caplan on the NIH’s Agreement Regarding Control of Henrietta Lacks’ Cells

    By Arthur Caplan Art Caplan has a new opinion piece up at nbcnews.com on the longstanding controversy over the use of the cells of Henrietta Lacks, a poor African American woman who died of cervical cancer in 1951, for research that has generated billions of dollars through scientific research over more than six decades. This research…

  • Read more: Science, Art, Policy, and the Importance of Good Science Communication

    Science, Art, Policy, and the Importance of Good Science Communication

    By Michelle Meyer  Although I promised that I was done commenting on the artist-cum-policy wonk who claims to make 3-D “masks” of unknown individuals from their discarded DNA, Matthew Herper of Forbes has taken the criticisms of her (and the media covering her project) articulated by me and others directly to the artist. I confess that…

  • Read more: Public Policy Considerations for Recent Re-Identification Demonstration Attacks on Genomic Data Sets: Part 1 (Re-Identification Symposium)

    Public Policy Considerations for Recent Re-Identification Demonstration Attacks on Genomic Data Sets: Part 1 (Re-Identification Symposium)

    By Michelle Meyer This post is part of Bill of Health‘s symposium on the Law, Ethics, and Science and Re-Identification Demonstrations. We’ll have more contributions throughout the week. Background on the symposium is here. You can call up all of the symposium contributions by clicking here. —MM Daniel C. Barth-Jones, M.P.H., Ph.D., is a HIV…

  • Read more: An Open Letter From a Genomic Altruist to a Genomic Extrovert (Re-Identification Symposium)

    An Open Letter From a Genomic Altruist to a Genomic Extrovert (Re-Identification Symposium)

    By Michelle Meyer This post is part of Bill of Health‘s symposium on the Law, Ethics, and Science of Re-Identification Demonstrations. You can call up all of the symposium contributions here. We’ll continue to post contributions throughout the week. —MM Dear Misha: In your open letter to me, you write: No one is asking you…

  • Read more: DNA Art

    DNA Art

    By Katharine Van Tassel According to an article in the NYT, an artist has collected DNA samples from litter on sidewalks, such as chewing gum and cigarette butts, and used those samples to extract and sequence DNA that she then used to make computer models of their owners’ faces. She then printed 3-D masks that…

  • Read more: Reidentification as Basic Science (Re-Identification Symposium)

    Reidentification as Basic Science (Re-Identification Symposium)

    By Michelle Meyer This post is part of Bill of Health‘s symposium on the Law, Ethics, and Science of Re-Identification Demonstrations. You can call up all of the symposium contributions here. We’ll continue to post contributions into next week. —MM Arvind Narayanan (Ph.D. 2009) is an Assistant Professor of Computer Science at Princeton. He studies…

  • Read more: I Never Promised You a Walled Garden (Re-Identification Symposium)

    I Never Promised You a Walled Garden (Re-Identification Symposium)

    By Michelle Meyer This post is part of Bill of Health‘s symposium on the Law, Ethics, and Science of Re-Identification Demonstrations. You can call up all of the symposium contributions here. We’ll continue to post contributions into next week. —MM By Misha Angrist Dear Michelle: You know I respect your work immensely: your paper on…

  • Read more: Reflections of a Re-Identification Target, Part I: Some Information Doesn’t Want To Be Free (Re-Identification Symposium)

    Reflections of a Re-Identification Target, Part I: Some Information Doesn’t Want To Be Free (Re-Identification Symposium)

    This post is part of Bill of Health‘s symposium on the Law, Ethics, and Science of Re-Identification Demonstrations. You can call up all of the symposium contributions here. Please note that Bill of Health continues to have problems receiving some comments. If you post a comment to any symposium piece and do not see it…

  • Read more: Data Sharing vs. Privacy: Cutting the Gordian Knot (Re-Identification Symposium)

    Data Sharing vs. Privacy: Cutting the Gordian Knot (Re-Identification Symposium)

    This post is part of Bill of Health‘s symposium on the Law, Ethics, and Science of Re-Identification Demonstrations. You can call up all of the symposium contributions here. Please note that Bill of Health continues to have problems receiving some comments. If you post a comment to any symposium piece and do not see it…

  • Read more: Breaking Good: A Short Ethical Manifesto for the Privacy Researcher

    Breaking Good: A Short Ethical Manifesto for the Privacy Researcher

    By Michelle Meyer This post is part of Bill of Health‘s symposium on the Law, Ethics, and Science of Re-Identification Demonstrations. We’ll have more contributions throughout the week, and extending at least into early next week. Background on the symposium is here. You can call up all of the symposium contributions here (or by clicking…